Evidence map›Paper›PMID 37951351›Full record

ArticleAcademic pediatrics2024

Optimizing Care for Autistic Patients in Health Care Settings: A Scoping Review and Call to Action.

Holly K Harris, Laura Weissman, Eron Y Friedlaender, Ann M Neumeyer, Alexander J Friedman, Sarah J Spence, Chloe Rotman, Shari Krauss, Sarabeth Broder-Fingert, Carol Weitzman

Open access · greenAbstract readScoping Review
In one paragraph

Article in Academic pediatrics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 1 pooled it
1.8field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 1 synthesis or guideline pooled it, 10 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Review
  4. Article
  5. Review
  6. Article
  7. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 6 institutions in 1 country.

Holly K HarrisDepartment of Pediatrics (HK Harris), Baylor College of Medicine and Meyer Center for Developmental Pediatrics, Texas Children's Hospital, Houston, Tex. Electronic address: holly.harris@bcm.edu.
Laura WeissmanDivision of Developmental Medicine (L Weissman and C Weitzman), Boston Children's Hospital and Harvard Medical School, Boston, Mass.
Eron Y FriedlaenderDepartment of Pediatrics (EY Friedlaender), Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pa.
Ann M NeumeyerLurie Center for Autism (AM Neumeyer), Massachusetts General Hospital and Harvard Medical School, Boston, Mass.
Alexander J FriedmanDivision of Developmental and Behavioral Pediatrics (AJ Friedman and S Krauss), Boston Medical Center, Boston, Mass.
Sarah J SpenceDivision of Neurology (SJ Spence), Boston Children's Hospital and Harvard Medical School, Boston, Mass.
Chloe RotmanMedical Library (C Rotman), Boston Children's Hospital, Boston, Mass.
Shari KraussDivision of Developmental and Behavioral Pediatrics (AJ Friedman and S Krauss), Boston Medical Center, Boston, Mass.
Sarabeth Broder-FingertDepartment of Pediatrics (S Broder-Fingert), UMASS Chan Medical School, Worcester, Mass.
Carol WeitzmanDivision of Developmental Medicine (L Weissman and C Weitzman), Boston Children's Hospital and Harvard Medical School, Boston, Mass.
Boston Children's Hospital · USBoston Medical Center · USBaylor College of Medicine · USHarvard University · USUniversity of Massachusetts Chan Medical School · USUniversity of Pennsylvania · US

Funding

Preclinical and Clincial OutcomesP50HD103555 · NICHD · BAYLOR COLLEGE OF MEDICINE · PI MIRJANA MALETIC-SAVATIC · 2020 to 2026
$9.9M
NICHD NIH HHS P50 HD103555
6 · The paper itself

Abstract

objectiveWe conducted a scoping review of interventions designed to improve the health care experiences of autistic individuals and assessed the methodology and outcomes used to evaluate them.

methodsLiterature from January 2005 to October 2020 was searched using PubMed, Excerpta Medica dataBASE (EMBASE), Cumulated Index to Nursing and Allied Health Literature (CINAHL), PsycINFO as well as hand searching. Studies included described an intervention for autistic individuals in inpatient or outpatient settings and evaluated the intervention using standardized methodology. Results were exported to Covidence software. Ten reviewers completed abstract screening, full text review, and then systematic data extraction of the remaining articles. Two reviewers evaluated each article at each stage, with a third reviewer arbitrating differences.

resultsA total of 38 studies, including three randomized controlled trials (RCTs) were included. Twenty-six (68%) took place in dental, psychiatric, or procedural settings. Interventions primarily focused on visit preparation and comprehensive care plans or pathways (N = 29, 76%). The most frequent outcome was procedural compliance (N = 15), followed by intervention acceptability (N = 7) and parent satisfaction (N = 6). Two studies involved autistic individuals and caregivers in study design, and no studies assessed racial/ethnic diversity on intervention impact.

conclusionsWell-designed evaluations of interventions to support autistic individuals in pediatric health care settings are limited. There is a need to conduct large multi-site intervention implementation studies.

Indexed as

Autistic DisorderChildDelivery of Health CareHumansInpatientsPersonal Satisfactionautismhealth equityinpatient careoutpatient care

Identifiers

PMID37951351
PMCPMC12283146
OpenAlexW4388570862

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.