Evidence map›Paper›PMID 37949502›Full record

ArticleBMJ global health2023

A collective autoethnography of coproduction in mental health research by academic researchers and young people in Brazil.

Felipe Rodrigues Siston, Sheila Giardini Murta, Josimar Antônio de Alcântara Mendes, Julyana Alves Ferreira, Victor Hugo de Lima Santos, Brenda Thallys Rocha Seabra, Rafa Ribeiro Alves de Souza, Rafaela de Oliveira da Cunha, Gabriela Pavarini

Abstract read
In one paragraph

Article in BMJ global health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
  4. Article
  5. 'Co-Production Is Caring': Young People's Reflections on Responsible and Dialogic Co-Production in Youth Mental Health.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  6. Towards Coproduction in Mental Health Academia: A Cooperative Inquiry.International journal of mental health nursing · 2025
    Article
  7. Article
  8. Article
  9. Article
  10. An Application of Evidence-Based Approaches to Engage Young People in the Design of a Global Mental Health Databank.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  11. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Felipe Rodrigues SistonDepartment of Clinical Psychology, Institute of Psychology, University of Brasilia, Brasilia, Brazil.
Sheila Giardini MurtaDepartment of Clinical Psychology, Institute of Psychology, University of Brasilia, Brasilia, Brazil.
Josimar Antônio de Alcântara MendesDepartment of Clinical Psychology, Institute of Psychology, University of Brasilia, Brasilia, Brazil.
Julyana Alves FerreiraEngajadamente Youth Collaborative Group, Brasília, Brazil.
Victor Hugo de Lima SantosEngajadamente Youth Collaborative Group, Brasília, Brazil.
Brenda Thallys Rocha SeabraEngajadamente Youth Collaborative Group, Brasília, Brazil.
Rafa Ribeiro Alves de SouzaEngajadamente Youth Collaborative Group, Brasília, Brazil.
Rafaela de Oliveira da CunhaEngajadamente Youth Collaborative Group, Brasília, Brazil.
Gabriela PavariniEthox Centre, Oxford Population Health, University of Oxford, Oxford, UK gabriela.pavarini@ethox.ox.ac.uk.ORCID 0000-0001-5574-4021

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionCoproduction of mental health research and interventions involving researchers and young people is increasingly common. However, this model raises challenges, related, for instance, to communication, power and control. This paper narrates-from a collective first-person perspective-the lived experience of coproduction of a digital intervention by institutional researchers and young citizen researchers in Brazil.

methodThis study employed a collaborative autoethnographic methodology, utilising autobiographical data such as meeting recordings, individual notes and collective guided reflections on the coproduction process. Our analysis focused on challenges and solutions that arose during the process.

resultsThroughout the project, we created formal and informal mechanisms for accountability, transparency and fair inclusion of multiple voices. We engaged in mutual capacity-building, invested in building interpersonal knowledge, and implemented practices to reduce overload and promote equitable participation. Through ongoing reflection and readjustment in response to challenges, we progressively embraced more democratic and egalitarian values. The collective care invested in the process fostered synergy, trust, and intergroup friendship.

conclusionOur experience points to the value of creating a space for multiple research identities: the citizen young person and the institutional researcher, both of whom critically reflect on their roles in the research process. Our focus on coproduced care calls into question participation metaphors that represent the process via a single axis-young people-who linearly progress from minimal participation to full autonomy. Instead, our analysis highlights the importance of a social and caring bond that supports the radical co-production of innovative health solutions in contexts of vulnerability.

Indexed as

Capacity BuildingMental HealthAdolescentBrazilCommunicationHumansSocial Responsibilitychild healthmental health & psychiatryqualitative study

Identifiers

PMID37949502
PMCPMC10649399

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.