Evidence map›Paper›PMID 37941389›Full record

ArticleThe Gerontologist2024

Care Partner Confidence and Experiences in Legal Planning for People Living With Dementia: A Mixed-Methods Study.

Anna Jolliff, Beth Fields, Justin Boutilier, Alex Dudek, Christian Elliott, Matthew Zuraw, Nicole E Werner

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in The Gerontologist, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Anna JolliffDepartment of Health and Wellness Design, Indiana University Bloomington, Bloomington, Indiana, USA.ORCID 0000-0002-5099-1469
Beth FieldsDepartment of Kinesiology, University of Wisconsin-Madison, Madison, Wisconsin, USA.ORCID 0000-0002-8192-7144
Justin BoutilierDepartment of Industrial and Systems Engineering, University of Wisconsin-Madison, Madison, Wisconsin, USA.
Alex DudekDepartment of Industrial and Systems Engineering, University of Wisconsin-Madison, Madison, Wisconsin, USA.
Christian ElliottWhiplash Technology, Inc., Palm Springs, California, USA.
Matthew ZurawWhiplash Technology, Inc., Palm Springs, California, USA.
Nicole E WernerDepartment of Health and Wellness Design, Indiana University Bloomington, Bloomington, Indiana, USA.

Funding

Design, Development, and Validation of an AI-enabled Legal Planning and Financial Management Training Solution for ADRD CaregiversR44AG074128 · NIA · WHIPLASH TECHNOLOGY, INC. · PI ELLIOTT, CHRISTIAN, WERNER, NICOLE E · 2021 to 2023
$2.2M
NIA NIH HHS R44 AG074128NIH HHS R44AG074128
6 · The paper itself

Abstract

BACKGROUND AND

objectivesCare partners of persons living with dementia perform complex legal planning tasks. The purpose of this study was to survey care partners in the United States to understand their confidence and experience in performing legal planning tasks. RESEARCH DESIGN AND

methodsThis study used a parallel mixed-methods research design. We administered a web-based survey to 318 adults who self-identified as care partners of persons living with dementia. The survey contained Likert scale questions and open-ended questions about legal planning tasks. Multivariate linear regression was used to analyze quantitative data and inductive thematic analysis was used to analyze qualitative data.

resultsCare partners were, on average, 53 years of age and 78% female. The three topics in which participants were least confident were: protecting oneself legally as a care partner; options when legal documents are not in place and a family member is not legally competent; and circumstances when legal documents should be updated or renewed. We observed significant differences in legal planning confidence between newer and more experienced care partners (p < .001); lower- and higher-income care partners (p = .01); and adult child versus spousal care partners (p < .001). Thematic analysis revealed that legal planning challenges include initiating a conversation with the person living with dementia, understanding and using legal materials, and accessing materials that accommodate individual differences. DISCUSSION AND IMPLICATIONS: It is vital to develop legal planning interventions that are tailored to specific subgroups of care partners, and to maximize the clarity, comprehensiveness, and accessibility of available legal planning education.

Indexed as

CaregiversDementiaAdultAgedFemaleHumansMaleMental CompetencyMiddle AgedSurveys and QuestionnairesUnited StatesAdvance care planningAlzheimer’s diseaseCaregiving—informalLaw

Identifiers

PMID37941389
PMCPMC11190962

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.