Evidence map›Paper›PMID 37941086›Full record

ArticleResearch involvement and engagement2023

Incorporation of patient and public involvement in statistical methodology research: development of an animation.

Hannah M Worboys, Jonathan Broomfield, Aiden Smith, Rachael Stannard, Freya Tyrer, Elpida Vounzoulaki, Barbara Czyznikowska, Gurpreet Grewal-Santini, Justin Greenwood, Laura J Gray

Abstract read
In one paragraph

Article in Research involvement and engagement, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

  1. How Do We Achieve Impactful Patient and Public Involvement and Engagement in Statistical Methodology Research? A Qualitative Research Protocol.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  2. Developing Public-Friendly Visualisations to Improve PPIE Glossaries for Statistical Methodology Research.Health expectations : an international journal of public participation in health care and health policy · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Hannah M WorboysDepartment of Population Health Sciences, University of Leicester, Leicester, UK. hw315@leicester.ac.uk.
Jonathan BroomfieldDepartment of Population Health Sciences, University of Leicester, Leicester, UK.
Aiden SmithDepartment of Population Health Sciences, University of Leicester, Leicester, UK.
Rachael StannardDepartment of Population Health Sciences, University of Leicester, Leicester, UK.
Freya TyrerDepartment of Population Health Sciences, University of Leicester, Leicester, UK.
Elpida VounzoulakiLeicester Real World Evidence Unit, Diabetes Research Centre, University of Leicester, Leicester, UK.
Barbara CzyznikowskaCentre for Ethnic Health Research, University of Leicester, Leicester, UK.
Gurpreet Grewal-SantiniCentre for Ethnic Health Research, University of Leicester, Leicester, UK.
Justin GreenwoodPublic Contributor, PPI-SMART (Public and Patient Involvement in Statistical Methods and Research Techniques), University of Leicester, Leicester, UK.
Laura J GrayDepartment of Population Health Sciences, University of Leicester, Leicester, UK.

Funding

Cancer Research UK C41379/A27583
6 · The paper itself

Abstract

backgroundPatient and Public Involvement and Engagement (PPIE) is important to all aspects of health research. However, there are few examples of successful PPIE in statistical methodology research. One of the reasons for this relates to challenges in the identification of individuals interested in statistical methodology research projects, and ambiguities over the importance of PPIE to these projects.

methodsThis project was conducted between August 2022 and August 2023. The aim is to report the process of the development of an accessible animation to describe what statistical methodology is and the importance of PPIE in statistical methodology research projects. For this, we combined storyboarding and scriptwriting with feedback from PPIE members and researchers.

resultsAfter three stages that incorporated feedback from the relevant stakeholders, we produced a final animation about PPIE in statistical methodology. The resulting animation used minimal text, simple animation techniques and was of short duration (< 3 min) to optimise the communication of the key messages clearly and effectively.

conclusionsThe resulting animation provides a starting point for members of the public to learn about PPIE in statistical methodology research and for methodologists who wish to conduct PPIE. We recommend further work to explore ways in which members of the public can be more meaningfully involved in methodology research.

Indexed as

AnimationCommunicationInvolvementPatient and Public Involvement and Engagement (PPIE)Public healthStatistical methodology researchVisualisation

Identifiers

PMID37941086
PMCPMC10631193

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.