ArticleBMC palliative care2023
Home care nurses facilitating planned home deaths. A focused ethnography.
Article in BMC palliative care, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed.
- Development of a Collaborative Education Program for Home Care Nursing Educators' on-the-Job Training in End-of-Life Home Care: Protocol for a Randomized Controlled Trial.JMIR research protocols · 2026Article
- Older patients' opportunity to die at home: a qualitative study on home care nurses' experiences.BMC nursing · 2026Article
- Understanding Cancer Care for Nursing Home Residents Living With Dementia: An Ethnographic Study.Psycho-oncology · 2025Article
- Supporting relatives when general palliative care is provided at home- a focus group study based on nurses' experiences.BMC palliative care · 2025Article
- Facilitating planned home death: A qualitative study on home care nurses' experiences of enablers and barriers.Journal of advanced nursing · 2025Article
- Nursing care to patients who have the home as the preferred place of death: a scoping review.BMC health services research · 2024Article
- A Critical Comparison of Focused Ethnography and Interpretive Phenomenology in Nursing Research.Global qualitative nursing researchArticle
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundHome care nurses provide complex palliative care for patients who want to die in their own homes. This study aimed to explore home care nurses' facilitation of planned home death to better understand nursing practices.
methodsData were collected between March 2019 and March 2020 using participant observations and semi-structured interviews. In addition, the number of planned home deaths was recorded. The analysis was guided by Roper and Shapira`s framework on focused ethnography.
resultsTwenty home care nurses (three men) in eight home care areas in two Norwegian municipalities met the inclusion criteria. Eight home deaths were registered, seven participatory observations were performed, and 20 semi-structured interviews were completed. Home care nurses find facilitating planned home deaths to be rewarding work, to the point of going above and beyond. At the same time, they describe facilitating planned home deaths as demanding work due to organizational stressors such as staff shortages, heavy workloads, and time restraints. While they tend to patients' needs, they also express concern for the wellbeing of the next of kin. They find it challenging to juggle the needs of the patients with the needs of next of kin, as these are not always correlated.
conclusionHome care nurses are pushing the boundaries of their practice when facilitating planned home deaths while compensating for a fragile system by going above and beyond for patients and their next of kin. Providing insights into the work of home care nurses providing palliative care in patients' homes can impact recruiting and retaining nurses in the workforce and influence local practices and policies.
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