Evidence map›Paper›PMID 37936148›Full record

ArticleBMC palliative care2023

Eye donation in hospice and hospital palliative care settings: perceptions, practice, and service development needs - findings from a national survey.

Tracy Long-Sutehall, Anna Zatorska, Michelle Myall, Christina Faull, Adam Hurlow, Sarah Mollart, Clare Rayment, Jill Short, Jane Wale, Emma Winstanley and 1 more

Abstract read
In one paragraph

Article in BMC palliative care, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Tracy Long-SutehallSchool of Health Sciences, University of Southampton, Southampton, UK. t.long@soton.ac.uk.
Anna ZatorskaYork and Scarborough Teaching Hospital NHS Foundation Trust, York, UK.
Michelle MyallSchool of Health Sciences, University of Southampton, Southampton, UK.
Christina FaullLOROS Hospice, Leicester, UK.
Adam HurlowLeeds Teaching Hospitals NHS Trust, Leeds, UK.
Sarah MollartWest Suffolk Hospital NHS Foundation Trust, Bury St Edmunds, UK.
Clare RaymentMarie Curie Hospice, Bradford, UK.
Jill ShortRowans Hospice, Waterlooville, UK.
Jane WaleMilton Keynes University Hospital NHS Foundation Trust, Milton Keynes, UK.
Emma WinstanleyNational Health Service Blood and Transplant Services- Organ and Tissue Donation and Transplantation (NHS BT - OTDT), Speke, UK.
Mike BracherSchool of Health Sciences, University of Southampton, Southampton, UK.

Funding

National Institute for Health and Care Research (NIHR) Health and Social Care Delivery Research programme HSDR 17/49/42
6 · The paper itself

Abstract

objectivesNew routes for supply of eye tissue are needed in the UK to support transplant surgery and medical research. Hospice care (HC) and Hospital-based Palliative care (HPC) services represent potential supply routes. This paper reports findings from the survey arm of the Eye Donation from Palliative and Hospice Care-Investigating potential, practice preference and perceptions study (EDiPPPP), objectives of which were to: i) Investigate existing practice in relation to eye donation across HC and HPC settings; ii) identify perceptions of HCPs toward embedding eye donation into routine end of life care planning; iii) investigate the informational, training, or support needs of clinicians regarding eye donation.

designOnline survey of UK-based HC and HPC clinicians, distributed through professional organisations (Association of Palliative Medicine (UK); Hospice UK).

participantsOne hundred fifty-six participants completed (63% HC; 37% HPC-8% response rate, of n = 1894 approached).

resultsMajority of participants (63%, n = 99) supported raising eye donation (ED) with patients and families and agreed that ED should be discussed routinely with eligible patients. However, 72%, (n = 95) indicated that staff within their clinical setting did not routinely discuss the option of ED in end-of-life care planning conversations with the majority of participants reporting that the option of ED was not 'routinely discussed in multi-disciplinary team or other meetings.

conclusionsDespite significant support, ED is not part of routine practice. Attention to barriers to embedding ED and reducing knowledge deficits are urgently needed to increase the supply of eye tissue for use in transplant operations.

Indexed as

Hospice and Palliative Care NursingHospice CareHospicesHumansPalliative CareSurveys and QuestionnairesAdvanced care planningBehaviour changeCorneal donationEnd of life careEye donationHealth services researchHospice carePalliative careTissue donation

Identifiers

PMID37936148
PMCPMC10631126

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.