ArticleQualitative health research2023
Exploring and Supporting Parents' Stories of Loss in the NICU: A Narrative Study.
Article in Qualitative health research, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
5 citing papers in PubMed.
- Ethical Decision-Making and Clinical Ethics Support in Italian Neonatal Intensive Care Units: Results from a National Survey.Healthcare (Basel, Switzerland) · 2026Article
- "That Is What We Have Left of Her": The Significance of Transitional Objects After the Death of an Infant in a Norwegian Context.Qualitative health research · 2025Article
- Utility of do-not-resuscitate orders for critically ill infants in the NICU.Pediatric research · 2025Article
- Women's psychological experiences of preterm labour and birth which results in an intrapartum stillbirth or a neonatal death: an empty systematic review.Frontiers in psychiatry · 2025Review
- A Lasting Impression: Exploring the Meaningfulness of a Singular Moment.Qualitative health research · 2024Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Death is no stranger to the neonatal intensive care unit (NICU). Extreme prematurity, congenital abnormalities, and other complexities can turn what was hoped to be a very exciting moment in a family's life into one of despair and grief. There are many infants that not only do not survive but also have a medicalized death necessitating complex decision-making, weighing quality versus duration of life. We can learn from the stories of parents who chose palliative care for their children. In this narrative inquiry study, we elicited bereaved parents' stories and reflections on the lives of their children and the care they received in the NICU. From a narrative ethics perspective, their stories speak to normative aspects of parenting, decision-making, and receiving medical care that affect their moral sense-making of their NICU experiences as well as their longer-term living with the loss of their children. Their stories express the importance of having had meaningful time with their children, maintaining direct and frequent communication, acknowledging uncertainty, and emphasizing compassion as methods of providing support to parents as they navigate their bereavement.
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Registered trials
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