Evidence map›Paper›PMID 37932724›Full record

ArticleBMC health services research2023

"It's gotta be done right way": a qualitative study exploring the acceptability of a proposed longitudinal cohort study of young Aboriginal children in Alice Springs.

Catherine Lloyd-Johnsen, Angela Hampton, Emma Stubbs, Sam Moore, Sandra Eades, Anita D'Aprano, Sharon Goldfeld

Abstract read
In one paragraph

Article in BMC health services research, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Catherine Lloyd-JohnsenCentre for Community Child Health, Murdoch Children's Research Institute, Melbourne, VIC, Australia. cat.lloydjohnsen@mcri.edu.au.ORCID http://orcid.org/0000-0002-7923-8059
Angela HamptonCentral Australian Aboriginal Congress, Alice Springs, NT, Australia.ORCID http://orcid.org/0000-0001-9001-3216
Emma StubbsCentral Australian Aboriginal Congress, Alice Springs, NT, Australia.ORCID https://orcid.org/0000-0002-2565-1235
Sam MooreCentral Australian Aboriginal Congress, Alice Springs, NT, Australia.ORCID https://orcid.org/0000-0002-0016-8546
Sandra EadesMelbourne School of Population and Global Health, The University of Melbourne, Melbourne, Australia.ORCID https://orcid.org/0000-0001-8629-3390
Anita D'ApranoCentre for Community Child Health, Murdoch Children's Research Institute, Melbourne, VIC, Australia.ORCID https://orcid.org/0000-0001-6231-5305
Sharon GoldfeldCentre for Community Child Health, Murdoch Children's Research Institute, Melbourne, VIC, Australia.ORCID https://orcid.org/0000-0001-6520-7094

Funding

Australian Government Research Training Program (RTP) ScholarshipJohn T. Reid Charitable Trusts Philanthropic Funds
6 · The paper itself

Abstract

There is a need for quality longitudinal data on the health and well-being of young Aboriginal and Torres Strait Islander children (hereafter Aboriginal) in Alice Springs that can be used for research, planning and evaluation. The primary aim of this descriptive qualitative study was to determine whether or not a proposed cohort study would be acceptable to the local community. The proposed cohort study will prospectively examine various factors, events and exposures in early life that give Aboriginal children the best chance to grow up strong and lead a healthy happy life. Decisions on specific priority issues to be addressed and study procedures will be determined by local Aboriginal researchers and community members during a future co-design phase. 27 semi-structured interviews and 3 focus group discussions (FGD) were conducted with a range of community stakeholders and parents/caregivers of young Aboriginal children from Alice Springs in the Northern Territory (NT) of Australia. Audio recorded data were transcribed and imported into NVivo12 qualitative software for reflexive thematic analysis. Three major themes concerning acceptability of the concept were constructed from the analysis: (1) Have to be mindful, (2) Duplication of data, and (3) "It's gotta be done right way". There was general support for the concept, however, many participants felt that a cautious and slow approach was necessary. Recommendations included focusing on building trust, taking it slow, and ensuring the study is conducted by local Aboriginal researchers. Barriers to feasibility noted included the high mobility of families, competing demands, and privacy concerns. Findings from this qualitative study support the feasibility and acceptability of a future cohort study of young Aboriginal children in Alice Springs. Leadership from respected local Aboriginal researchers and key stakeholders will be critical to its success.

Indexed as

Australian Aboriginal and Torres Strait Islander PeoplesHealth Services, IndigenousChildCohort StudiesHumansLongitudinal StudiesNorthern TerritoryQualitative ResearchAustralian AboriginalChild HealthIndigenousLongitudinal studiesQualitative studyThematic Analysis

Identifiers

PMID37932724
PMCPMC10626690

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.