ArticleThe South African journal of psychiatry : SAJP : the journal of the Society of Psychiatrists of South Africa2023
Caregiver burden among caregivers of children with autism spectrum disorder.
Article in The South African journal of psychiatry : SAJP : the journal of the Society of Psychiatrists of South Africa, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 1 of them a synthesis that pooled it.
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Who cites it
26 citing papers in PubMed, 1 synthesis or guideline pooled it, 28 citations in OpenAlex.
- Psychosocial Burden of Adolescent Idiopathic Scoliosis: A Systematic Review and Meta-Synthesis of Patient and Caregiver Perspectives.Health expectations : an international journal of public participation in health care and health policy · 2026Pooled it
- Dynamics of Digital Support Platform Use Among Family Caregivers of Children With Disabilities: Longitudinal Study.JMIR mHealth and uHealth · 2026Article
- Mitochondrial Dysfunction in Autism and Attention-Deficit/Hyperactivity Disorder: Evidence from Genetic, Biochemical, and Neuroimaging Approaches.Antioxidants (Basel, Switzerland) · 2026Review
- Longitudinal Adaptive Functioning Outcomes in Children with Autism Spectrum Disorder During a 180 Day Open-Label Extension of K11-Tmax, a Consortium Probiotic Mix with Multivitamins.Life (Basel, Switzerland) · 2026Article
- Coping strategies of parents of children with chronic diseases and their relationship with caregiving burden.BMC pediatrics · 2026Article
- Design and application of emotion-oriented play-learning tools for children with autism: a cross-cultural qualitative study of parents and teachers in China and Malaysia.Frontiers in psychology · 2026Article
- Applying self-determination theory to understand maternal well-being in autism caregiving: a mini review.Frontiers in child and adolescent psychiatry · 2026Review
- Article
- Exploring caregivers' experiences when seeking mental health care services for their children with autism spectrum disorder: A qualitative study from South Africa.The South African journal of psychiatry : SAJP : the journal of the Society of Psychiatrists of South Africa · 2026Article
- Quality of life and caregiver burden among caregivers of children with autism spectrum disorder and neurotypical children: a cross-sectional study.Einstein (Sao Paulo, Brazil) · 2026Article
- Care pathways, service access, and psychosociaasl support needs in children and adolescents with autism spectrum disorder: a narrative review.Frontiers in public health · 2026Review
- Stigmatization related experience among mothers of children with autism.Frontiers in public health · 2026Article
- Effectiveness and experiences of early intensive behavioral and naturalistic developmental behavior interventions for autism spectrum disorders: a mixed-methods systematic review and meta-analysis.Child and adolescent psychiatry and mental health · 2025Review
- The effect of burden and loneliness on depression in female caregivers through purpose in life.BMC public health · 2025Article
- "No one was coming to save us": an interpretative phenomenological analysis exploring the experience of parents supporting their autistic daughter through anorexia nervosa.Journal of eating disorders · 2025Article
- Social capital and quality of life among caregivers of children with Autism Spectrum Disorder in Mongolia: a cross-sectional study.BMC public health · 2025Article
- Understanding the caregiver experience: a cross-sectional study of caregiver burden among those caring for chronically ill children in Jordan.BMJ paediatrics open · 2025Article
- The Quality of the Parent-Child Relationship in the Context of Autism: The Role of Parental Resolution of the Child's Diagnosis, Parenting Stress, and Caregiving Burden.European journal of investigation in health, psychology and education · 2025Article
- The Quality of Life of Iranian Mothers and Fathers of Children with Autism.Children (Basel, Switzerland) · 2025Article
- Caregiving for autistic children in Nigeria: experiences and challenges.Discover mental health · 2025Article
Corrections and comments
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Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Autism spectrum disorder (ASD) is a neurodevelopmental disorder with deficits in social communication and interaction, restricted and repetitive patterns of behaviour, interests and activities. Autism spectrum disorder is associated with multiple comorbidities. As a result, caregivers of children with ASD experience increased levels of burden and poor quality of life. However, there is a paucity of information on the burden. Aim: The study aimed to describe the sociodemographic profiles and determine the extent of the burden experienced by caregivers of children and adolescents with ASD. Setting: The Child, Adolescent and Family Unit (CAFU) outpatient services at Charlotte Maxeke Johannesburg Academic Hospital (CMJAH). Methods: A quantitative, descriptive, cross-sectional study was done. Two self-administered questionnaires were used: a sociodemographic questionnaire and the 12-item Zarit Burden Interview questionnaire. Results: The questionnaires were completed by 77 caregivers, of which the majority were female ( Conclusion: Caregivers of children and adolescents with a diagnosis of ASD are mostly mothers and experience mild to moderate levels of caregiver burden, suggesting the need for improved screening and psychosocial support programmes. Contribution: This study highlights the burden experienced by primary caregivers of children with ASD and is one of the few comprehensive studies on this issue within the context of South Africa.
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