ArticleAgeing and society2023
Experiences of stigma and discrimination among people living with dementia and family carers in Brazil: Qualitative study.
Article in Ageing and society, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.
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Who cites it
14 citing papers in PubMed, 1 synthesis or guideline pooled it.
- People With Dementia Disclosing Their Diagnosis to Social Networks: A Systematic Review and Meta-Synthesis.The Gerontologist · 2025Pooled it
- Undiagnosed dementia and mortality among older adults in the United States and Brazil: A cross-national cohort study.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2026Article
- Views on dementia among informal caregivers of people with dementia: A scoping review and thematic analysis of qualitative studies.Journal of Alzheimer's disease : JAD · 2026Article
- Spontaneous conversations as data in young-onset dementia research: a qualitative study.Frontiers in dementia · 2026Article
- Community knowledge of dementia: a cross-sectional study in the Southeast region of Brazil.Dementia & neuropsychologia · 2026Article
- 'Firstly, I'm not treated like a fool.'-the perspective of people with dementia on a dementia-friendly hospital.Age and ageing · 2025Article
- Living with dementia: Exploring the intersections of culture, race, and dementia, stigma.Dementia (London, England) · 2024Article
- Insights and recommendations for working collaboratively and improving care in Alzheimer's disease: Learnings from the Finding Alzheimer's Solutions Together (F.A.S.T.) Council.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Affiliate Stigma among family caregivers of individuals with dementia in China: a cross-sectional study.Frontiers in public health · 2024Article
- The development and validation of the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia).BJPsych open · 2023Article
- iSupport for Young Carers: An Adaptation of an e-Health Intervention for Young Dementia Carers.International journal of environmental research and public health · 2022Article
- Article
- Feasibility and pilot testing of a non-randomized teacher training program to improve knowledge and attitudes toward aging and dementia in public schools in Brazil: The ARISE program.Alzheimer's & dementia (Amsterdam, Netherlands)Article
- The (in)visible Brazilians: A perspective review on the need for brain health and dementia research with Brazilian immigrants in the United States.Alzheimer's & dementia (New York, N. Y.)Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
This study aimed to understand stigma in relation to people living with dementia in Sao Paulo, Brazil. Critical Narrative Inquiry methodology was used. Semi-structured interviews were conducted between January and March 2020 with six people living with dementia and 15 family carers. Inductive and deductive techniques were used. The latter was informed by Link and Phelan's (2001) sociological theory of stigma. Dementia was commonly viewed by people living with dementia as part of ageing and carers reported low levels awareness about the condition. To avoid negative reactions from people, people living with dementia managed the negative views of dementia by minimising and normalising the condition, by expressing their ability to live an active life, and by emphasising the positive impacts of dementia in their lives. Fear of negative reactions appeared to lead to a selective disclosure of their diagnosis. Among carers, stigmatising attitudes coincided with a strong willingness to provide good care, to protect the person cared for, as well as to understand and validate their caring experiences, rather than to cause harm. In doing so, however, carers ended up depersonalising and infantilising people living with dementia, underestimating their capacities, demanding 'obedience', and restricting their freedom. There is a need to increase awareness about dementia and to provide support and training on person-centred care for carers in Brazil.
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