Evidence map›Paper›PMID 37915951›Full record

ArticlePalliative medicine reports2023

Pulmonologists' Perspectives on and Access to Palliative Care for Patients With Idiopathic Pulmonary Fibrosis in South Carolina.

Kathleen Oare Lindell, Mohan Madisetti, Tracy Fasolino, MaryChris Pittman, Patrick Coyne, Timothy P M Whelan, Martina Mueller, Dee W Ford

Abstract read
In one paragraph

Article in Palliative medicine reports, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Kathleen Oare LindellCollege of Nursing, Medical University of South Carolina, Charleston, South Carolina, USA.
Mohan MadisettiCollege of Nursing, Medical University of South Carolina, Charleston, South Carolina, USA.
Tracy FasolinoSchool of Nursing, College of Behavioral, Social, & Health Sciences, Clemson University, Clemson, South Carolina, USA.
MaryChris PittmanCollege of Nursing, Medical University of South Carolina, Charleston, South Carolina, USA.
Patrick CoyneCollege of Nursing, Medical University of South Carolina, Charleston, South Carolina, USA.
Timothy P M WhelanDivision of Pulmonary and Critical Care Medicine, College of Medicine, Medical University of South Carolina, Charleston, South Carolina, USA.
Martina MuellerCollege of Nursing, Medical University of South Carolina, Charleston, South Carolina, USA.
Dee W FordDivision of Pulmonary and Critical Care Medicine, College of Medicine, Medical University of South Carolina, Charleston, South Carolina, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Idiopathic pulmonary fibrosis (IPF) is a serious illness with an unpredictable disease course and survival rates comparable with some cancers. Patients with IPF suffer considerable symptom burden, declining quality of life, and high health care resource utilization. Patients and caregivers report many unmet needs, including a desire for more education regarding diagnosis and assistance with navigating disease trajectory. Compelling evidence suggests that palliative care (PC) provides an extra layer of support for patients with serious illness. Research Question: The purpose of this survey was to gain perspectives regarding PC for patients with IPF by board-certified pulmonologists in South Carolina (SC). Study Design and Methods: A 24-item survey was adapted (with permission) from the Pulmonary Fibrosis Foundation PC Survey instrument. Data were analyzed and results are presented. Results: Pulmonologists ( Interpretation: Pulmonologists in SC who participated in this survey are aware of the principles of PC in providing comprehensive care to patients with IPF and have limited options for PC referral. PC educational materials provided early in the diagnosis can help facilitate and guide end-of-life planning and discussions. Minimal resources exist for patients in underserved communities.

Indexed as

Idiopathic Pulmonary Fibrosispalliative carepulmonologistsserious illness

Identifiers

PMID37915951
PMCPMC10616941

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.