ArticleBJGP open2024
Experiences and care needs of children with long COVID: a qualitative study.
Article in BJGP open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed, 12 citations in OpenAlex.
- "It's sad, and I want to go back to how things were before": a qualitative study of young people's experiences of living with long COVID.BMJ paediatrics open · 2026Article
- Psychosocial impact of pediatric long COVID: a dyadic analysis of persistent symptoms, sleep, and self-esteem in parents and children.Frontiers in psychology · 2026Article
- Experiences of living with long COVID during childhood and adolescence: a qualitative study from the child's perspective.BMC pediatrics · 2025Article
- Development and Validation of POCOKIDS-Q-A Questionnaire to Assess Post COVID-19 Symptoms in Children.Acta paediatrica (Oslo, Norway : 1992) · 2025Article
- Perceptions and Significance of Long Covid Diagnoses From the Perspectives of Children and Young People With Long Covid, Their Parents and Professionals.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Neuropsychiatric Manifestations of Long COVID-19: A Narrative Review of Clinical Aspects and Therapeutic Approaches.Life (Basel, Switzerland) · 2025Review
- Long COVID and Health Inequalities: What's Next for Research and Policy Advocacy?Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Using a novel methodology to map Post-COVID services for children and young people in England: a web-based systematic search.BMC health services research · 2024Article
- Coproducing Health Information Materials With Young People: Reflections and Lessons Learned.Health expectations : an international journal of public participation in health care and health policy · 2024Article
Corrections and comments
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Authors and funding
7 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundLong COVID, the patient-preferred term, describes symptoms persisting after an acute episode of COVID-19 infection. Symptoms in children and young people (CYP) can affect daily routine, with broader impacts on education, health-related quality of life, and social activities, which may have long-term effects on health and wellbeing.
aimTo explore the lived experiences and care needs of CYP with long COVID from the perspectives of CYP with long COVID, their parents, and professionals associated with the care of children and families living with the condition. DESIGN &
settingCYP and their parent or carer were invited for interview following participation in a cohort study, which recruited the sample from a primary care setting.
methodInterviews were carried out with four CYP with long COVID (all female, aged 10-17 years); three interviews included a parent. Two focus groups were conducted, which included seven professionals involved with care of CYP or long COVID, from a range of disciplines. Interviews and focus groups were transcribed verbatim, and data analysed thematically using constant comparison techniques.
resultsThe three main themes presented are as follows: living with long COVID; uncertainty surrounding long COVID; and seeking help for symptoms.
conclusionLong COVID can severely impact the lives of CYP and their families. CYP and their families need to be listened to by professionals and have any uncertainties acknowledged. It is imperative that agencies working with them understand the condition and its impact, and are able to offer support where needed.
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