Evidence map›Paper›PMID 37914193›Full record

ArticleEuropean respiratory review : an official journal of the European Respiratory Society2023

Self-management interventions for people with pulmonary fibrosis: a scoping review.

Joanna Y T Lee, Gabriella Tikellis, Leona Dowman, Arwel W Jones, Mariana Hoffman, Christie R Mellerick, Carla Malaguti, Yet H Khor, Anne E Holland

Open access · diamondAbstract readScoping Review
In one paragraph

Article in European respiratory review : an official journal of the European Respiratory Society, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 1 pooled it
2.8field-weighted citation impact, top 8% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 1 synthesis or guideline pooled it, 11 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
  4. Review
  5. Are the gains from pulmonary rehabilitation the same in idiopathic pulmonary fibrosis and other interstitial lung diseases?Sarcoidosis, vasculitis, and diffuse lung diseases : official journal of WASOG · 2024
    Article
  6. Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 6 institutions in 2 countries.

Joanna Y T LeeRespiratory Research@Alfred, Central Clinical School, Monash University, Melbourne, Australia.ORCID https://orcid.org/0000-0003-2567-6990
Gabriella TikellisRespiratory Research@Alfred, Central Clinical School, Monash University, Melbourne, Australia.
Leona DowmanRespiratory Research@Alfred, Central Clinical School, Monash University, Melbourne, Australia.
Arwel W JonesRespiratory Research@Alfred, Central Clinical School, Monash University, Melbourne, Australia.ORCID https://orcid.org/0000-0003-1689-8065
Mariana HoffmanRespiratory Research@Alfred, Central Clinical School, Monash University, Melbourne, Australia.
Christie R MellerickRespiratory Research@Alfred, Central Clinical School, Monash University, Melbourne, Australia.
Carla MalagutiRespiratory Research@Alfred, Central Clinical School, Monash University, Melbourne, Australia.ORCID https://orcid.org/0000-0002-6619-136X
Yet H KhorRespiratory Research@Alfred, Central Clinical School, Monash University, Melbourne, Australia.ORCID https://orcid.org/0000-0002-5434-9342
Anne E HollandRespiratory Research@Alfred, Central Clinical School, Monash University, Melbourne, Australia a.holland@alfred.org.au.ORCID https://orcid.org/0000-0003-2061-845X
Monash University · AUInstitute for Breathing and Sleep · AUAlfred Health · AUAustin Health · AUMonash Alfred Psychiatry Research centre · AUUniversidade Federal de Juiz de Fora · BR

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe most effective method for encouraging self-management in individuals with pulmonary fibrosis (PF) is unclear. This review aimed to identify common self-management components, the outcome measures used and the impact of these components in PF.

methodsA scoping review was conducted according to the

results87 studies were included. Common self-management components included education (78%), managing physical symptoms (66%) and enhancing psychosocial wellbeing (54%). Components were predominantly delivered in a pulmonary rehabilitation setting (71%). No studies tested a PF-specific self-management package. Common outcome measures were 6-min walk distance (60%), St George's Respiratory Questionnaire (37%) and the Medical Research Council Dyspnoea scale (34%). Clinically significant improvements in these outcomes were seen in ≥50% of randomised controlled trials. Qualitative data highlighted the importance of healthcare professional and peer support and increased confidence in managing PF.

conclusionSelf-management components are commonly incorporated into pulmonary rehabilitation programmes rather than being offered as standalone packages. Future research should focus on testing PF-specific self-management packages and employ standardised outcome assessments that include self-efficacy and health-related behaviours.

Indexed as

Pulmonary Disease, Chronic ObstructivePulmonary FibrosisSelf-ManagementAdultHumansQuality of LifeSelf Care

Identifiers

PMID37914193
PMCPMC10618910
OpenAlexW4388111419

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.