Evidence map›Paper›PMID 37914157›Full record

ArticleApplied clinical informatics2023

Development and User Testing of a Dynamic Tool for Rheumatic Heart Disease Management.

Sarah R de Loizaga, Jafesi Pulle, Joselyn Rwebembera, Jessica Abrams, Jenifer Atala, Emily Chesnut, Kristen Danforth, Ndate Fall, Nicholas Felicelli, Karen Lapthorn and 17 more

Abstract read
In one paragraph

Article in Applied clinical informatics, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

27 authors.

Sarah R de LoizagaThe Heart Institute, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, United States.
Jafesi PulleUganda Heart Institute, Mulago Hospital, Kampala, Uganda.
Joselyn RwebemberaUganda Heart Institute, Mulago Hospital, Kampala, Uganda.
Jessica AbramsDivision of Paediatric Cardiology, Department of Paediatrics and Child Health, University of Cape Town, Cape Town, South Africa.
Jenifer AtalaUganda Heart Institute, Mulago Hospital, Kampala, Uganda.
Emily ChesnutDepartment of Biomedical Informatics, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, United States.
Kristen DanforthDepartment of Global Health & Division of Cardiology, University of Washington, Seattle, Washington, United States.
Ndate FallThe Heart Institute, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, United States.
Nicholas FelicelliDepartment of Biomedical Informatics, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, United States.
Karen LapthornDepartment of Biomedical Informatics, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, United States.
Chris T LongeneckerDepartment of Global Health & Division of Cardiology, University of Washington, Seattle, Washington, United States.
Neema W MinjaUganda Heart Institute, Mulago Hospital, Kampala, Uganda.
Ryan A MooreThe Heart Institute, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, United States.
Riley MorrisonDepartment of Biomedical Informatics, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, United States.
Jeremiah MwangiReach, Geneva, Switzerland.
Doreen NakagaayiUganda Heart Institute, Mulago Hospital, Kampala, Uganda.
Miriam NakittoUganda Heart Institute, Mulago Hospital, Kampala, Uganda.
Craig SableDepartment of Cardiology, Children's National Medical Center, Washington, District of Columbia, United States.
Amy SanyahumbiDivision of Pediatric Cardiology, Department of Pediatrics, Baylor College of Medicine, Texas Children's Hospital, Houston, United States.
Rachel SarnackiDepartment of Cardiology, Children's National Medical Center, Washington, District of Columbia, United States.
Jenipher ThemboUganda Heart Institute, Mulago Hospital, Kampala, Uganda.
Sophie La VincenteReach, Geneva, Switzerland.
David WatkinsDepartment of Global Health & Division of Cardiology, University of Washington, Seattle, Washington, United States.
Liesl ZühlkeDivision of Cardiology and Paediatric Cardiology, Department of Medicine/Paediatrics and Child Health, University of Cape Town, Cape Town, South Africa.
Emmy OkelloUganda Heart Institute, Mulago Hospital, Kampala, Uganda.
Andrea BeatonThe Heart Institute, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, United States.
Judith W DexheimerDepartment of Pediatrics, University of Cincinnati School of Medicine, Cincinnati, Ohio, United States.

Funding

American Heart Association-American Stroke Association 20SFRN35360185 - ANDREA BEATON
6 · The paper itself

Abstract

objectiveMost rheumatic heart disease (RHD) registries are static and centralized, collecting epidemiological and clinical data without providing tools to improve care. We developed a dynamic cloud-based RHD case management application with the goal of improving care for patients with RHD in Uganda.

methodsThe Active Community Case Management Tool (ACT) was designed to improve community-based case management for chronic disease, with RHD as the first test case. Global and local partner consultation informed selection of critical data fields and prioritization of application functionality. Multiple stages of review and revision culminated in user testing of the application at the Uganda Heart Institute.

resultsGlobal and local partners provided feedback of the application via survey and interview. The application was well received, and top considerations included avenues to import existing patient data, considering a minimum data entry form, and performing a situation assessment to tailor ACT to the health system setup for each new country. Test users completed a postuse survey. Responses were favorable regarding ease of use, desire to use the application in regular practice, and ability of the application to improve RHD care in Uganda. Concerns included appropriate technical skills and supports and potential disruption of workflow.

conclusionCreating the ACT application was a dynamic process, incorporating iterative feedback from local and global partners. Results of the user testing will help refine and optimize the application. The ACT application showed potential for utility and integration into existing care models in Uganda.

Indexed as

Rheumatic Heart DiseaseHumansRegistriesSurveys and QuestionnairesUganda

Identifiers

PMID37914157
PMCPMC10620041

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.