Evidence map›Paper›PMID 37907378›Full record

ArticleAmerican journal of critical care : an official publication, American Association of Critical-Care Nurses2023

Barriers to and Facilitators of Family Caregiving of Patients With COVID-19 Early in the Pandemic.

Amanda N Leggett, Sheria G Robinson-Lane, Grace Oxford, Natalie Leonard, Alicia G Carmichael, Elaina Baker, Janeann Paratore, Amanda C Blok, Hallie C Prescott, Theodore J Iwashyna and 1 more

Open access · greenAbstract read
In one paragraph

Article in American journal of critical care : an official publication, American Association of Critical-Care Nurses, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.5field-weighted citation impact, top 36% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 2 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 8 institutions in 2 countries.

Amanda N LeggettAmanda N. Leggett is an assistant professor in the Institute of Gerontology at Wayne State University, Detroit, Michigan, and an adjunct assistant professor, Department of Psychiatry, School of Medicine, University of Michigan Ann Arbor.
Sheria G Robinson-LaneSheria G. Robinson-Lane is an assistant professor, Department of Systems, Populations, and Leadership, School of Nursing, University of Michigan Ann Arbor.
Grace OxfordGrace Oxford is a research assistant, Biosocial Methods Collaborative, University of Michigan Ann Arbor.
Natalie LeonardNatalie Leonard is a research technician, Research Center for Group Dynamics, Institute for Social Research, University of Michigan Ann Arbor.
Alicia G CarmichaelAlicia G. Carmichael is a research process manager, Research Center for Group Dynamics, Institute for Social Research, University of Michigan Ann Arbor.
Elaina BakerElaina Baker is a research assistant, Department of Psychiatry, School of Medicine, University of Michigan Ann Arbor.
Janeann ParatoreJaneann Paratore is a research assistant, Biosocial Methods Collaborative, University of Michigan Ann Arbor.
Amanda C BlokAmanda C. Blok is a research assistant professor, Department of Systems, Populations and Leadership, School of Nursing, University of Michigan and a research health scientist, VA Center for Clinical Management Research, Ann Arbor VA Healthcare System, Ann Arbor, Michigan.
Hallie C PrescottHallie C. Prescott is an associate professor, Pulmonary and Critical Care, Department of Internal Medicine, School of Medicine, University of Michigan and a research investigator, VA Center for Clinical Management Research, Ann Arbor VA Healthcare System.
Theodore J IwashynaTheodore J. Iwashyna is the Bloomberg Distinguished Professor of Social Science and Justice in Medicine and professor of medicine, Pulmonary and Critical Care Medicine, Johns Hopkins School of Medicine, Baltimore, Maryland.
Richard GonzalezRichard Gonzalez is the Amos N. Tversky Professor, Psychology and Statistics and director, Research Center for Group Dynamics, University of Michigan.
Arbor Research Collaborative for Health · USInstitute for Social Research · NOUniversity of Michigan · USBloomberg (United States) · USSystems Dynamics (United States) · USVA Ann Arbor Healthcare System · USVA Center for Clinical Management Research · USWayne State University · US

Funding

Research Education ComponentP30AG072931 · NIA · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI Ana Marie Daugherty · 2021 to 2026
$26.5M
Michigan Alzheimer's Disease Core CenterP30AG053760 · NIA · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI PAULSON, HENRY L · 2016 to 2020
$10.1M
Style and Substance: Characterizing Dementia Caregiving Styles and Associated Biopsychosocial and Health Services Utilization OutcomesK01AG056557 · NIA · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI LEGGETT, AMANDA NOEL · 2017 to 2021
$664k
Culturally Responsive Support Programming for Black Caregivers of Persons with DementiaK01AG065420 · NIA · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI ROBINSON-LANE, SHERIA GRICE · 2020 to 2024
$639k
HSRD VA IK2 HX003530NIA NIH HHS K01 AG056557NIA NIH HHS K01 AG065420NIA NIH HHS P30 AG053760NIA NIH HHS P30 AG072931
6 · The paper itself

Abstract

backgroundIn 2020, many family members were thrust into the role of caregiving for a relative with COVID-19 with little preparation, training, or understanding of the disease and its symptoms.

objectivesTo explore the barriers to and facilitators of caregiving experienced by family caregivers of patients with COVID-19 who had been in intensive care in the pandemic's earliest months.

methodsIn-depth qualitative interviews were conducted by web conference with 16 adults recovering at home after intubation for COVID-19 in an intensive care unit at a major academic medical center and their primary caregivers from March to August 2020 (N = 32). Thematic qualitative analysis was done using Watkins' rigorous and accelerated data reduction technique with MAXQDA software.

resultsSeven themes emerged regarding factors that facilitated or posed barriers to care: other health conditions that increased complexity of care, interactions and experiences in the health care system, COVID-19's proliferation into other areas of life, the psychological well-being of the patient-caregiver dyad, experience of support from the dyad's network, the role of caregiving in the dyad, and contextual circumstances of the dyad. The themes often included both barriers and facilitators, depending on the experience of the dyad (eg, feeling encouraged vs fatigued by their support network).

conclusionsUnderstanding how patients with COVID-19 and their caregivers experience illness management across the recovery journey can help clarify the COVID-19 care-giving process and identify intervention targets to improve overall health and well-being of the care dyad.

Indexed as

COVID-19AdultCaregiversEmotionsFamilyHumansPandemics

Identifiers

PMID37907378
PMCPMC11995669
OpenAlexW4388076198

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.