ArticleJournal of clinical medicine2023
What Really Matters to Survivors of Acute Type A Aortic Dissection-A Survey of Patient-Reported Outcomes in the Dutch National Aortic Dissection Advocacy Group.
Article in Journal of clinical medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed, 9 citations in OpenAlex.
- Co-creating a patient-driven digital monitoring agenda for thoracic aortic disease: a multiphase qualitative study.BMJ open · 2026Article
- From survival to lifelong care: The role of patient organisations in aortic dissection.American heart journal plus : cardiology research and practice · 2026Article
- Heterogeneity in kinesiophobia among postoperative aortic dissection survivors: associations with exercise self-efficacy, family support, and coping styles.Frontiers in psychology · 2026Article
- Return to Work After Type A Aortic Dissection.Cureus · 2026Article
- Influencing factors of health promotion behaviour in patients with aortic dissection: a qualitative study using the COM-B model.BMJ open · 2025Article
- Beyond Survival: Assessing Quality of Life, Activity Level, and Ethnic Diversity in Aortic Dissection Survivors.Journal of cardiovascular development and disease · 2025Article
- Exploring ethnic differences in the perioperative course of thoracic aortopathy.Frontiers in cardiovascular medicine · 2025Article
- Survival after surgery for acute type A aortic dissection in octogenarians.Journal of geriatric cardiology : JGC · 2024Article
- The TRAIN Health Awareness Clinical Trial: Baseline Findings and Cardiovascular Risk Management in Aortic Dissection Patients.Aorta (Stamford, Conn.) · 2024Article
- Practical Considerations of Remote Care in Thoracic Aortopathy in India.Journal of clinical medicine · 2024Article
Corrections and comments
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Authors and funding
7 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
(1) Background: Type A acute aortic dissection (TAAAD) almost always requires emergency surgery, and postoperative complications are common. Quality assurance systems tend to measure only the hard outcomes, e.g., complications and mortality. Our aim was to assess the health-related quality of life of TAAAD survivors. (2) Methods: An anonymized, Dutch language, web-based survey was sent out to all of the participants of the 2022 Annual Meeting of the Dutch National Aortic Dissection (DNAD) advocacy group via their own representatives. The survey was divided into five sections: patient information, global satisfaction, surgery, including complications, and the recovery period. (3) Results: Ninety members of the DNAD group attended the meeting. Seventy-five (83%) participated in the survey, and the responses from 61 (81%) were available for analysis. Despite hindrances in their daily life (complications, changes in physical, cognitive, and social functioning), patients were satisfied with their treatment, and all would undergo the procedure again. In addition they requested better post-discharge guidance and communication (4) Conclusion: The emphasis lies in equipping patients with knowledge about potential outcomes and effective coping strategies. This underscores the importance of communication and expectation management, in line with established literature.
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