ArticleResearch involvement and engagement2023
Incorporation of patient and public involvement in statistical methodology research: a survey assessing current practices and attitudes of researchers.
Article in Research involvement and engagement, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed.
- Patient and Public Involvement and Engagement (PPIE) in methodological research: exploring challenges, tensions and learning from the perspectives of PPIE and researchers in the Realist Economic Evaluation Methods (REEM) study.Research involvement and engagement · 2026Article
- How Do We Achieve Impactful Patient and Public Involvement and Engagement in Statistical Methodology Research? A Qualitative Research Protocol.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Embedding the public voice in clinical trials: developing public-informed training for patient data research.Research involvement and engagement · 2026Article
- Perception of physiotherapy researchers about patient and public involvement in health research design and planning in Nigeria.BMC health services research · 2026Article
- Developing Public-Friendly Visualisations to Improve PPIE Glossaries for Statistical Methodology Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- A rapid evaluation of the reporting and publishing practices of patient and public involvement and engagement in health research within a UK university institute.Research involvement and engagement · 2026Review
- Co-designing animated videos to explain large language models and their use in healthcare and research.Frontiers in digital health · 2026Article
- Patient and public involvement and engagement in methodology research: process, experiences, and recommendations from the SPIRIT- and CONSORT-Surrogate project.Research involvement and engagement · 2025Article
- Patient and Public Involvement (PPI) in Secondary Data Analysis: Protocol for a Targeted Review.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- 'Plugging the gap': development of a plain language glossary for statistical methodology research.Research involvement and engagement · 2025Article
- Understanding the Scope, Intent and Extent of Published Conceptual Frameworks of Frameworks for Patient and Public Involvement in Health and Social Care Research: A Rapid Scoping Review.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Incorporation of Patient and Public Involvement in Statistical Methodology Research: Summary of Workshop Proceedings.Statistics in medicine · 2025Article
- Equality, equity, diversity, and inclusion principles: how should we apply these to statistical methodology research?BMC medical research methodology · 2025Article
- Mapping the evidence for patient and public involvement and engagement in statistical methodology research: A scoping review protocol.PloS one · 2025Article
- Patient and public involvement and engagement in the development of innovative patient-centric early phase dose-finding trial designs.Research involvement and engagement · 2024Article
- "The power imbalance was blown out the window": developing and implementing creative workshops to enhance communication of statistics in patient and public involvement in clinical trials.Research involvement and engagement · 2024Article
- Incorporation of patient and public involvement in statistical methodology research: development of an animation.Research involvement and engagement · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
12 authors.
Funding
Abstract
backgroundPatient and public involvement (PPI) ensures that research is designed and conducted in a manner that is most beneficial to the individuals whom it will impact. It has an undisputed place in applied research and is required by many funding bodies. However, PPI in statistical methodology research is more challenging and work is needed to identify where and how patients and the public can meaningfully input in this area.
methodsA descriptive cross-sectional research study was conducted using an online questionnaire, which asked statistical methodologists about themselves and their experience conducting PPI, either to inform a grant application or during a funded statistical methodology project. The survey included both closed-text responses, which were reported using summary statistics, and open-ended questions for which common themes were identified.
results119 complete responses were recorded. Individuals who completed the survey displayed an even range of ages, career lengths and positions, with the majority working in academia. 40.3% of participants reported undertaking PPI to inform a grant application and the majority reported that the inclusion of PPI was received positively by the funder. Only 21.0% of participants reported undertaking PPI during a methodological project. 31.0% of individuals thought that PPI was "very" or "extremely" relevant to statistical methodology research, with 45.5% responding "somewhat" and 24.4% answering "not at all" or "not very". Arguments for including PPI were that it can provide the motivation for research and shape the research question. Negative opinions included that it is too technical for the public to understand, so they cannot have a meaningful impact.
conclusionsThis survey found that the views of statistical methodologists on the inclusion of PPI in their research are varied, with some individuals having particularly strong opinions, both positive and negative. Whilst this is clearly a divisive topic, one commonly identified theme was that many researchers are willing to try and incorporate meaningful PPI into their research but would feel more confident if they had access to resources such as specialised training, guidelines, and case studies.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.