Evidence map›Paper›PMID 37884121›Full record

ArticleContemporary clinical trials2023

I kua na'u "Let me carry out your last wishes" Clinical trial protocol to promote advance care planning among native Hawaiian populations.

Lisa M Quintiliani, Martina Kamaka, Lori Henault, Mapuana C K Antonio, Tetine Sentell, Kimberley Spencer, Gerard Akaka, Liana K Laea Honda, Damien Hanakeawe, Adrienne Dillard and 7 more

Registry-linked trialOpen access · greenAbstract readClinical Trial Protocol
In one paragraph

Article in Contemporary clinical trials, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04771208 (I Kua na'u "Let Me Carry Out Your Last Wishes" Advance Care Planning for Native Hawaiian Elders - Trial Phase), which is not on this map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact, top 75% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04771208 naactive not recruitingnot on this map

I Kua na'u "Let Me Carry Out Your Last Wishes" Advance Care Planning for Native Hawaiian Elders - Trial Phase

TypeinterventionalSponsorTufts Medical CenterRan2023 to 2026Enrolled220ConditionsAdvance Care PlanningArmsI kua na'u "Let Me Carry Out Your Last Wishes"
3 · Its place in the literature

Who cites it

0 citing papers in PubMed, 0 citations in OpenAlex.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors at 7 institutions in 1 country.

Lisa M QuintilianiDepartment of Medicine, Tufts University School of Medicine, Tufts Medical Center, USA. Electronic address: lisa.quintiliani@tuftsmedicine.org.
Martina KamakaDepartment of Native Hawaiian Health, John A. Burns School of Medicine, University of Hawaii at Manoa, USA.
Lori HenaultBoston Medical Center, USA.
Mapuana C K AntonioNative Hawaiian and Indigenous Health, Thompson School of Social Work & Public Health, University of Hawaii, USA.
Tetine SentellDepartment of Native Hawaiian Health, John A. Burns School of Medicine, University of Hawaii at Manoa, USA.
Kimberley SpencerDepartment of Native Hawaiian Health, John A. Burns School of Medicine, University of Hawaii at Manoa, USA.
Gerard AkakaThe Queens Health System, USA.
Liana K Laea HondaThe Queens Health System, USA.
Damien HanakeaweThe Queens Health System, USA.
Adrienne DillardDepartment of Native Hawaiian Health, John A. Burns School of Medicine, University of Hawaii at Manoa, USA; Kula No Na Po'e Hawaii o Papakolea, Kewalo, Kalawahine, USA.
B Puni KekauohaKula No Na Po'e Hawaii o Papakolea, Kewalo, Kalawahine, USA.
Aretha Delight DavisACP Decisions, USA.
Rae SeitzHui Pohala, USA.
Howard J CabralDepartment of Biostatistics, Boston University School of Public Health, USA.
Angelo VolandesDepartment of Medicine, Massachusetts General Hospital, Harvard Medical School, USA.
Marjorie K Leimomi Mala MauDepartment of Native Hawaiian Health, John A. Burns School of Medicine, University of Hawaii at Manoa, USA.
Michael K Paasche-OrlowDepartment of Medicine, Tufts University School of Medicine, Tufts Medical Center, USA.
University of Hawaiʻi at Mānoa · USPapa Ola Lokahi · USTufts University · USBoston Medical Center · USBoston University · USHanalei Watershed Hui · USMassachusetts General Hospital · US

Funding

I kua na'u "Let Me Carry Out Your Last Wishes" Advance Care Planning for NativeHawaiian EldersR01NR018400 · NINR · TUFTS MEDICAL CENTER · PI MAU, MARJORIE K. LEIMOMI MALA, PAASCHE-ORLOW, MICHAEL · 2020 to 2025
$3.6M
NINR NIH HHS R01 NR018400
6 · The paper itself

Abstract

Advance Care Planning (ACP) is a communication process about serious illness decision making designed to inform patients of possible medical options. Native Hawaiians consistently have low rates of ACP and low use of palliative and hospice care services. Our multidisciplinary community and research group partnered to create I kua na'u "Let Me Carry Out Your Last Wishes," an ACP intervention featuring culturally tailored videos and are now testing its efficacy. Focus groups and informant interviews were conducted with Native Hawaiian community members to ensure the curriculum honored the history, opinions, and culture of Native Hawaiians. Native Hawaiian culture has traditionally been an oral culture; the spoken word transmitted the mo'olelo, stories, traditions, histories and genealogies, which merges seamlessly with video media. The I kua na'u intervention included multiple educational sessions enhanced with videos (informational and personal). The specific aims are to compare ACP knowledge (primary outcome) and readiness for ACP engagement, ACP preferences, decisional conflict, and ACP completion rates via electronic medical record review (secondary outcomes) in 220 Native Hawaiians over age 55 in: (a) a randomized controlled trial of 110 people recruited from ambulatory clinics, and (b) a pre-post study design among 110 people living on Hawaiian Homestead communities located on lands set aside for Native Hawaiians or assisted living. Our protocol aims to evaluate the efficacy of our video-based educational intervention for Native Hawaiians to support decision making in this community and decrease disparities in serious illness care. Clinical Trial Registration Number: NCT04771208.

Indexed as

Advance Care PlanningNative Hawaiian or Pacific IslanderCommunicationCulturally Competent CareHawaiiHumansMiddle AgedRandomized Controlled Trials as TopicAdvance care planningDoctor patient communicationEducational decision aid videoMedical decision makingNative Hawaiian

Identifiers

PMID37884121
PMCPMC10814879
OpenAlexW4387911499

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.