Evidence map›Paper›PMID 37878811›Full record

ArticleThe Gerontologist2024

Community-Engaged Research With Latino Dementia Caregivers: Overcoming Challenges in Community Advisory Board Development.

Maria M Quiñones, Silvia Sörensen, Kenneth Hepburn, Jahaira Capellan, Kathi L Heffner

Open access · greenAbstract read
In one paragraph

Article in The Gerontologist, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
2.0field-weighted citation impact, top 13% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 7 citations in OpenAlex.

  1. Article
  2. Advancing global dementia research through equity and inclusion.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2026
    Article
  3. Article
  4. Article
  5. Article
  6. NIA Research Centers Collaborative Network.Journal of the American Geriatrics Society · 2024
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 3 institutions in 1 country.

Maria M QuiñonesElaine C. Hubbard Center for Nursing Research on Aging, School of Nursing, University of Rochester Medical Center, Rochester, New York, USA.ORCID 0000-0001-5881-8436
Silvia SörensenWarner School of Education and Human Development, University of Rochester, Rochester, New York, USA.ORCID 0000-0002-6102-1580
Kenneth HepburnNell Hodgson Woodruff School of Nursing, Emory University, Atlanta, Georgia, USA.ORCID 0000-0002-3498-6272
Jahaira CapellanClinical Translational Science Institute, University of Rochester Medical Center, Rochester, New York, USA.
Kathi L HeffnerElaine C. Hubbard Center for Nursing Research on Aging, School of Nursing, University of Rochester Medical Center, Rochester, New York, USA.
University of Rochester Medical Center · USEmory University · USUniversity of Rochester · US

Funding

The University of Rochester's Clinical and Translational Science InstituteUL1TR002001 · NCATS · UNIVERSITY OF ROCHESTER · PI WILSON, KAREN M., ZAND, MARTIN S · 2016 to 2024
$34.6M
Roybal Translational Research Center to Promote Context-Specific Caregiving of Community-Dwelling Persons Living with Alzheimer's Disease or Related DisordersP30AG064200 · NIA · EMORY UNIVERSITY · PI Ken W Hepburn · 2019 to 2026
$8.6M
Research Centers Collaborative Network RenewalU24AG058556 · NIA · WAKE FOREST UNIVERSITY HEALTH SCIENCES · PI KRITCHEVSKY, STEPHEN B., LEDERMAN, STEPHANIE · 2018 to 2025
$7.5M
NRSA Training CoreTL1TR002000 · NCATS · UNIVERSITY OF ROCHESTER · PI THAKAR, JUILEE, VAN WIJNGAARDEN, EDWIN · 2016 to 2024
$4.1M
Rochester Roybal Center for Social Ties and Aging ResearchP30AG064103 · NIA · UNIVERSITY OF ROCHESTER · PI HEFFNER, KATHI L, VAN ORDEN, KIMBERLY ALLISON · 2019 to 2023
$3.6M
NCATS NIH HHS CTSI UL1TR002001NCATS NIH HHS TL1 TR002000NCATS NIH HHS UL1 TR002001NIA NIH HHS P30 AG064103NIA NIH HHS P30 AG064200NIA NIH HHS U24AG05855NIA NIH HHS U24 AG058556
6 · The paper itself

Abstract

BACKGROUND AND

objectivesLatinos caring for a person with Alzheimer's disease and related dementias (ADRD) have the highest prevalence of caregiving. Yet, they are less likely to benefit from evidence-based interventions given their continued underrepresentation in ADRD-related research. Community advisory boards (CABs) have the potential to address barriers to research for underrepresented communities; however, there are complexities to establishing and sustaining CABs. This article describes how our work addressed challenges in CABs related to unbalanced power relations, language barriers, the value of time, and low research knowledge and health literacy. RESEARCH DESIGN AND

methodsNine Latino CAB members, including older Latino caregivers, were trained in a comprehensive program designed to increase knowledge about health research methods and ethics, cognitive health, and cultural adaptation methods. Members completed pre- and post-training measures of Alzheimer's disease knowledge, attitudes, and beliefs toward research, and a satisfaction survey.

resultsResults from the satisfaction questionnaire indicated that the program was well received. CAB members increased their knowledge regarding the management of behavioral and psychological symptoms of dementia and dementia-associated risk factors and treatment. Positive changes in members' attitudes toward research included increased willingness to participate in trials and subject protection measures. DISCUSSION AND IMPLICATIONS: Formalized training in research conduct and ethics and health literacy is a promising strategy to reduce challenges in establishing and maintaining CABs and can also optimize CAB impact to address gaps in older Latino ADRD caregiving research.

Indexed as

Alzheimer DiseaseAgedCaregiversCommunication BarriersEthics, ResearchHispanic or LatinoHumansAlzheimer’s diseaseCaregivingHealth equityLatino culture

Identifiers

PMID37878811
PMCPMC11020250
OpenAlexW4387949794

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.