ArticlePloS one2023
The caring experiences of family caregivers for patients with advanced cancer in Uganda: A qualitative study.
Article in PloS one, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.
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Who cites it
6 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Caregivers' Perceptions of End-of-Life Care in Brazil: A Qualitative Systematic Review.Revista brasileira de enfermagem · 2026Pooled it
- The Experience of Social Alienation in Patients with Chronic Cancer-Related Pain: A Qualitative Study.Journal of pain research · 2026Article
- A scoping review on mindfulness-based interventions for families of patients with advanced cancer.GHM open · 2025Review
- Patients' and caregivers' experiences of familial and social support in resource-poor settings: A systematically constructed review and meta-synthesis.Palliative care and social practice · 2025Review
- 'Only to reconcile with it'. The coping experience amongst middle-aged and older cancer survivors: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Health and economic impact of caregiving on informal caregivers of people with chronic diseases in sub-Saharan Africa: A systematic review.PLOS global public health · 2024Article
Corrections and comments
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Authors and funding
11 authors.
Funding
Abstract
backgroundCancer morbidity and mortality is rising in sub-Saharan Africa. Given this rise, family caregivers play an integral role in provision of quality cancer care services. This study explored the family caregivers (FCGs)/relatives' experiences of caring for patients with advanced cancer (stage 3 or stage 4) in Uganda.
methodsThis was a descriptive qualitative study exploring the lived experiences of FCGs of patients with advanced cancer attending care at the Uganda cancer institute. We purposively recruited twelve FCGs and conducted face-to-face in-depth interviews using an interviewer-guided semi-structured questionnaire. Data were analyzed by thematic analysis.
resultsThe age range of participants was 19 to 49 years. Most participants were children of the patients (n = 7), had attained tertiary education (n = 7), and had taken care of their loved ones for at least one year (n = 10). Six themes emerged from data analysis; (i) caring roles, (ii) caring burdens, (iii) role conflict, (iv) health system tensions, (v) support and motivation, (vi) caring benefits, lessons and recommendations.
conclusionStudy findings highlight the fundamental role of FCGs in the care of their loved ones, and illuminate the neglected physical, psychological and social challenges of family caregivers amidst health system tensions and conflicting roles. The needs of family caregivers should be embedded within cancer care, prevention and control programs particularly in low resource settings.
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