Evidence map›Paper›PMID 37877879›Full record

ArticleUrology research & practice2023

Assessing Infertility Literacy and Knowledge Gaps Among Patients with Cystic Fibrosis.

Farah Rahman, Katherine Campbell, Nicholas Deebel, Armin Ghomeshi, Mohammed Zarli, Lisa Domaradzki, Maria Gabriela Tupayachi Ortiz, Ranjith Ramasamy

Abstract read
In one paragraph

Article in Urology research & practice, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Review
  2. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Farah RahmanDesai Sethi Urology Institute, Miller School of Medicine, University of Miami, Miami, FL, USA.
Katherine CampbellDesai Sethi Urology Institute, Miller School of Medicine, University of Miami, Miami, FL, USA.
Nicholas DeebelDepartment of Urology, Wake Forest University School of Medicine, Winston Salem, NC, USA.
Armin GhomeshiHerbert Wertheim College of Medicine, Florida International University, Miami, FL, USA.
Mohammed ZarliDr. Kiran C Patel College of Osteopathic Medicine, Nova Southeastern University, Fort Lauderdale, FL, USA.
Lisa DomaradzkiDepartment of Pulmonology, University of Miami, Miami, FL, USA.
Maria Gabriela Tupayachi OrtizDepartment of Pulmonology, University of Miami, Miami, FL, USA.
Ranjith RamasamyDesai Sethi Urology Institute, Miller School of Medicine, University of Miami, Miami, FL, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveAs patients with cystic fibrosis live longer into their reproductive years, fertility concerns are rising. We hypothesized that while patients with cystic fibrosis may be informed of the impact of their disease on their reproductive potential, they remain unaware of the promising role of assisted reproductive technology in helping them conceive biological children.

methodsWe distributed a voluntary and anonymous survey to cystic fibrosis patients and organizations to assess patient understanding of cystic fibrosis-related infertility. The survey questions aimed to capture demographic information, their reproductive education regarding cystic fibrosis, and their preferences for future fertility.

resultsForty respondents completed the survey (median age of 36 ± 14 years). The median age reported for learning about cystic fibrosis-associated infertility was 18 years. Respondents preferred that reproductive and infertility education be provided early; 43% reported the optimal age of education was younger than 18 years while 50% reported between 18 and 24 years. Of the respondents trying to conceive, 43% of patients have been trying to conceive for 1-3 years qualifying for infertility. Yet, the majority of those patients (69%) have not been offered a semen analysis and 90% have not had previous fertility treatments.

conclusionOur findings highlight that cystic fibrosis patients are knowledgeable about cystic fibrosis-related impacts on their fertility, with high-rated self-confidence. A fraction of patients still desire to conceive but have not been provided with assisted reproductive services. We recommend the establishment of active partnerships between cystic fibrosis care teams and fertility specialists to maximize their chances of conception.

Identifiers

PMID37877879
PMCPMC10646797

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.