Evidence map›Paper›PMID 37870049›Full record

ArticleThe European journal of general practice2023

Advance care planning among older adults in Belgium with Turkish backgrounds and palliative care needs: A qualitative interview study.

Hakki Demirkapu, Lieve Van den Block, Stéphanie De Maesschalck, Aline De Vleminck, F Zehra Colak, Dirk Devroey

Open access · goldAbstract read
In one paragraph

Article in The European journal of general practice, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed, 1 pooled it
0.9field-weighted citation impact, top 24% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 synthesis or guideline pooled it, 3 citations in OpenAlex.

  1. Pooled it
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 3 institutions in 2 countries.

Hakki DemirkapuDepartment of Family Medicine and Chronic Care, Vrije Universiteit Brussel, Brussels, Belgium.ORCID 0000-0002-1732-9609
Lieve Van den BlockEnd-of-Life Care Research Group, Vrije Universiteit Brussel and Ghent University, Brussels and Ghent, Belgium.ORCID 0000-0002-7770-348X
Stéphanie De MaesschalckDepartment of Public Health and Primary Health Care, Ghent University, Ghent, Belgium.ORCID 0000-0002-3249-2535
Aline De VleminckEnd-of-Life Care Research Group, Vrije Universiteit Brussel and Ghent University, Brussels and Ghent, Belgium.ORCID 0000-0002-3321-9311
F Zehra ColakDepartment of Education, University of Utrecht, Utrecht, The Netherlands.ORCID 0000-0001-6806-0745
Dirk DevroeyDepartment of Family Medicine and Chronic Care, Vrije Universiteit Brussel [VUB], Brussels, Belgium.ORCID 0000-0002-6083-2998
Vrije Universiteit Brussel · BEGhent University · BEUtrecht University · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundData on advance care planning (ACP) among migrants in Europe is lacking. Research has shown that few older migrants in the United States perform ACP due to healthcare system distrust, collectivistic values and spirituality/religion.

objectivesTo explore the ACP knowledge and perspectives of older Turkish-origin adults in Belgium requiring palliative care.

methodGeneral practitioners (GPs) in Brussels and Antwerp recruited Turkish-origin participants aged ≥ 65 years with palliative care eligibility for this qualitative study. A GP conducted semi-structured interviews in Turkish in respondents' homes between May 2019 and February 2022 using a topic guide. Two researchers performed combined inductive/deductive thematic data analysis.

resultsAll 15 interviewees (average age, 79 years) lacked ACP awareness and information. Some had discussed specific end-of-life preferences (e.g. care location, burial place) with family. Still, many did not feel the need to discuss future healthcare preferences, due mainly to trust in God and family for caretaking and decision-making. Some respondents viewed ACP discussions as applicable, relieving the burden on family and enabling proactive addressing of 'what if' questions. Self-identified ACP barriers were fear of making wrong decisions, 'living in the moment' and difficulty discussing death. Facilitators were obtaining sufficient ACP information and recent family illness or death.

conclusionOur sample of Turkish-origin older adults in Belgium requiring palliative care lacked ACP knowledge. Our findings suggest that their lack of engagement in discussing end-of-life medical care planning was linked to their family dynamics and religion. The findings have implications for healthcare providers to ethnic-minority groups.

Indexed as

Advance Care PlanningPalliative CareAgedBelgiumDeathHumansQualitative ResearchAdvance care planningend-of-life caremigrantolder adultqualitative study

Identifiers

PMID37870049
PMCPMC10990253
OpenAlexW4387865612

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.