Evidence map›Paper›PMID 37863801›Full record

ArticleAmerican journal of surgery2024

Information transparency with immediate release: Oncology clinician and patient perceptions.

Elizabeth O'Brien, Sudheer Vemuru, Laura Leonard, Ben Himelhoch, Monica Adams, Nancy Taft, Kshama Jaiswal, Sharon Sams, Ethan Cumbler, Dulcy Wolverton and 6 more

Abstract read
In one paragraph

Article in American journal of surgery, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Elizabeth O'BrienUniversity of Colorado School of Medicine, Department of Surgery, 12631 East 17th Ave. 6th Floor, Aurora, CO, 80045, USA. Electronic address: Elizabeth.a.obrien@cuanschutz.edu.
Sudheer VemuruUniversity of Colorado School of Medicine, Department of Surgery, 12631 East 17th Ave. 6th Floor, Aurora, CO, 80045, USA.
Laura LeonardUniversity of Colorado School of Medicine, Department of Surgery, 12631 East 17th Ave. 6th Floor, Aurora, CO, 80045, USA.
Ben HimelhochUniversity of Colorado School of Medicine, Department of Radiology, 12401 East 17th Ave, Aurora, CO, 80045, USA.
Monica AdamsUniversity of Colorado School of Medicine, Adult and Child Center for Outcomes Research and Delivery Science (ACCORDS), 1890 N Revere Ct. 3rd Floor, Aurora, CO, 80045, USA.
Nancy TaftUniversity of Colorado School of Medicine, Department of Surgery, 12631 East 17th Ave. 6th Floor, Aurora, CO, 80045, USA.
Kshama JaiswalUniversity of Colorado School of Medicine, Department of Surgery, 12631 East 17th Ave. 6th Floor, Aurora, CO, 80045, USA.
Sharon SamsUniversity of Colorado School of Medicine, Department of Pathology, 12631 East 17th Ave. 2nd Floor, Aurora, CO, 80045, USA.
Ethan CumblerUniversity of Colorado School of Medicine, Department of Medicine, 12631 East 17th Ave. 8th Floor, Aurora, CO, 80045, USA.
Dulcy WolvertonUniversity of Colorado School of Medicine, Department of Radiology, 12401 East 17th Ave, Aurora, CO, 80045, USA.
Gretchen AhrendtUniversity of Colorado School of Medicine, Department of Surgery, 12631 East 17th Ave. 6th Floor, Aurora, CO, 80045, USA.
Jeniann YiUniversity of Colorado School of Medicine, Department of Surgery, 12631 East 17th Ave. 6th Floor, Aurora, CO, 80045, USA.
Chen-Tan LinUniversity of Colorado School of Medicine, Department of Medicine, 12631 East 17th Ave. 8th Floor, Aurora, CO, 80045, USA.
Randy MilesUniversity of Colorado School of Medicine, Department of Radiology, 12401 East 17th Ave, Aurora, CO, 80045, USA.
Karen HampandaUniversity of Colorado School of Medicine, Department of Obstetrics and Gynecology, 12631 East 17th Avenue. 4th Floor, Aurora, CO, 80045, USA.
Sarah TevisUniversity of Colorado School of Medicine, Department of Surgery, 12631 East 17th Ave. 6th Floor, Aurora, CO, 80045, USA.

Funding

University of Colorado Cancer Center Support Grant - Lung Cancer Patient-Derived Xenografts with Autologous Human Immune SystemsP30CA046934 · NCI · UNIVERSITY OF COLORADO DENVER · PI James V Degregori · 1988 to 2026
$117.0M
Paul Calabresis Award in Clinical Oncology ResearchK12CA086913 · NCI · UNIVERSITY OF COLORADO DENVER · PI VIRGINIA F. BORGES, Jill E Slansky · 2000 to 2026
$17.8M
Cancer Research Experiences for Undergraduates (CREU)R25CA240122 · NCI · UNIVERSITY OF COLORADO DENVER · PI SCHWEPPE, REBECCA ELIZABETH · 2019 to 2024
$1.6M
NCI NIH HHS K12 CA086913NCI NIH HHS P30 CA046934NCI NIH HHS R25 CA240122
6 · The paper itself

Abstract

introductionAs part of the 21st Century Cures Act (April 2021), electronic health information (EHI) must be immediately released to patients. In this study, we sought to evaluate clinician and patient perceptions regarding this immediate release.

methodsAfter surveying 33 clinicians and 30 patients, semi-structured interviews were conducted with a subset of the initial sample, comprising 8 clinicians and 12 patients. Open-ended questions explored clinicians' and patients' perceptions of immediate release of EHI and how they adjusted to this change.

resultsTen themes were identified: Interpreting Results, Strategies for Patient Interaction, Patient Experiences, Communication Strategies, Provider Limitations, Provider Experiences, Health Information Interfaces, Barriers to Patient Understanding, Types of Results, and Changes due to Immediate Release. Interviews demonstrated differences in perceived patient distress and comprehension, emphasizing the impersonal nature of electronic release and necessity for therapeutic clinician-patient communication.

conclusionsClinicians and patients have unique insights on the role of immediate release. Understanding these perspectives will help improve communication and develop patient-centered tools (glossaries, summary pages, additional resources) to aid patient understanding of complex medical information.

Indexed as

CommunicationPatientsHumansQualitative ResearchElectronic health informationHealth literacyImmediate releasePatient-centered resourcesPatient comprehension

Identifiers

PMID37863801
PMCPMC11112620

What OpenQuestion holds

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Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.