Evidence map›Paper›PMID 37863795›Full record

ArticleAmerican journal of surgery2024

Characterizing informational needs and information seeking behavior of patients with breast cancer.

Abigail Ludwigson, Victoria Huynh, Sudheer Vemuru, Karina Romandetti, Christine Fisher, Helen L Coons, Jessica Pettigrew, Karen Hampanda, Christodoulos Kaoutzanis, Gretchen Ahrendt and 3 more

Abstract read
In one paragraph

Article in American journal of surgery, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Association of Breast Cancer Patient Education with Disease Understanding and Anxiety: Analysis Using the EORTC QLQ-INFO25 and HADS.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026
    Article
  3. "Going Flat" After Mastectomy: A Social Media Analysis of Patient Perspectives and Educational Needs.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026
    Article
  4. Article
  5. Article
  6. Fertility Information Perceptions and Needs of People with Cancer, Their Family Members, and Caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
  7. Article
  8. "The Materials Didn't Really Seem to Apply to Me": A Focus-Group Study on Young Women's Needs and Perspectives on Breast Cancer Educational Material.Journal of cancer education : the official journal of the American Association for Cancer Education · 2024
    Article
  9. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Abigail LudwigsonUniversity of Colorado School of Medicine, 13001 E 17th Pl, Aurora, CO, USA. Electronic address: Abigail.ludwigson@cuanschutz.edu.
Victoria HuynhDepartment of Surgery, University of Colorado School of Medicine, Aurora, CO, USA.
Sudheer VemuruDepartment of Surgery, University of Colorado School of Medicine, Aurora, CO, USA.
Karina RomandettiDepartment of Surgery, University of Colorado School of Medicine, Aurora, CO, USA.
Christine FisherDepartment of Radiation Oncology, University of Colorado School of Medicine, Aurora, CO, USA.
Helen L CoonsDepartment of Psychiatry, University of Colorado School of Medicine, Aurora, CO, USA.
Jessica PettigrewDepartment of Obstetrics and Gynecology, University of Colorado School of Medicine, Aurora, CO, USA.
Karen HampandaDepartment of Obstetrics and Gynecology, University of Colorado School of Medicine, Aurora, CO, USA.
Christodoulos KaoutzanisDivision of Plastic and Reconstructive Surgery, Department of Surgery, University of Colorado School of Medicine, Aurora, CO, USA.
Gretchen AhrendtDepartment of Surgery, University of Colorado School of Medicine, Aurora, CO, USA.
Anosheh AfghahiDepartment of Medicine, University of Colorado School of Medicine, Aurora, CO, USA.
Camille StewartDepartment of Surgery, University of Colorado School of Medicine, Aurora, CO, USA.
Sarah TevisDepartment of Surgery, University of Colorado School of Medicine, Aurora, CO, USA.

Funding

Paul Calabresis Award in Clinical Oncology ResearchK12CA086913 · NCI · UNIVERSITY OF COLORADO DENVER · PI VIRGINIA F. BORGES, Jill E Slansky · 2000 to 2026
$17.8M
NCI NIH HHS K12 CA086913
6 · The paper itself

Abstract

backgroundAppropriate information may facilitate adjustment to cancer diagnoses. Our study aims to characterize informational satisfaction in breast cancer patients and assess resources used by patients to gain information.

methodsNewly diagnosed Stage 0-III breast cancer patients seen at an academic medical center between May and September 2020 received questionnaires assessing information satisfaction. Patients indicated resources used to obtain information along with satisfaction with information received in various topics. A subset of questionnaire respondents completed semi-structured interviews.

resultsFifty-two (35 ​%) patients completed the questionnaire. Patients received information from physicians (96 ​%), the internet (81 ​%), nurses (79 ​%), and fellow breast cancer patients (54 ​%). Interview participants preferred receiving information from providers when making medical decisions but found patient forums and social media to be important adjuncts for receiving information.

conclusionPatients are satisfied with information received about diagnosis and treatment, but finances, sexual health, and fertility are less frequently discussed.

Indexed as

Breast NeoplasmsPhysiciansFemaleHumansInformation Seeking BehaviorSurveys and QuestionnairesBreast cancerInformation seekingPatient satisfactionResources

Identifiers

PMID37863795
PMCPMC11376347

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.