Evidence map›Paper›PMID 37857547›Full record

Observational studyBMJ open2023

LitCog Caregiver Cohort: a prospective, observational cohort study investigating US caregivers' health literacy, self-care skills and cognitive function.

Rachel O'Conor, Morgan Bonham, Lauren Opsasnick, Grace Magnuson, Julia Yoshino Benavente, Laura M Curtis, Mary Morrissey Kwasny, Michael Wolf

Abstract readObservational Study
In one paragraph

Observational study in BMJ open, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Rachel O'ConorDivision of General Internal Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA r-oconor@northwestern.edu.ORCID 0000-0001-5104-9531
Morgan BonhamDivision of General Internal Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Lauren OpsasnickDivision of General Internal Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Grace MagnusonDivision of General Internal Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Julia Yoshino BenaventeDivision of General Internal Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.ORCID 0000-0003-0549-1809
Laura M CurtisDivision of General Internal Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Mary Morrissey KwasnyPreventive Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Michael WolfDivision of General Internal Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.

Funding

Northwestern University Clinical and Translational Science Institute (NUCATS)UL1TR001422 · NCATS · NORTHWESTERN UNIVERSITY AT CHICAGO · PI D'AQUILA, RICHARD · 2015 to 2023
$56.8M
Supplement to LitCog III: Health Literacy and Cognitive Function among Older AdultsR01AG030611 · NIA · NORTHWESTERN UNIVERSITY AT CHICAGO · PI WOLF, MICHAEL S · 2007 to 2024
$11.6M
Research Design, Data, and Analytics CoreP30DK092949 · NIDDK · UNIVERSITY OF CHICAGO · PI Ronald T. Ackermann, MARSHALL H CHIN · 2011 to 2026
$10.0M
The Claude D. Pepper Older Americans Independence Center (OAIC) at Northwestern UniversityP30AG059988 · NIA · NORTHWESTERN UNIVERSITY AT CHICAGO · PI CELLA, DAVID · 2020 to 2024
$7.1M
Management of Complex Medication Regimens among Older Adults with Alzheimer's Disease and Related Dementias and their CaregiversK01AG070107 · NIA · NORTHWESTERN UNIVERSITY AT CHICAGO · PI O'CONOR, RACHEL · 2021 to 2025
$685k
NCATS NIH HHS UL1 TR001422NIA NIH HHS K01 AG070107NIA NIH HHS P30 AG059988NIA NIH HHS R01 AG030611NIDDK NIH HHS P30 DK092949
6 · The paper itself

Abstract

introductionMany older adults receive assistance in managing chronic conditions. Yet complicating the utility of caregiver support is whether caregivers have sufficient skills to aid in a patient's self-care. Health literacy and cognition are important determinants of older adults' health outcomes, but few studies have examined caregiver health literacy, cognition and self-care skills and their relations to patient outcomes. METHODS AND ANALYSIS: We will expand an ongoing cognitive ageing cohort study (LitCog) to enroll a parallel caregiver cohort. Caregivers are eligible if they are (1) ≥18 years of age, (2) provided care for ≥6 months and (3) assisted with at least one activity of daily living, instrumental activity of daily living or health management task. Caregivers will complete interviews at time points corresponding with the LitCog participant interviews. Caregivers will complete assessments of health literacy, self-care skills, cognitive function, caregiver healthcare task difficulty, caregiver burden, caregiver self-efficacy, activation, technology use, busyness and routine and relationship quality. Caregivers will self-report the nature and intensity of care provided, and their own health status. Associations between caregiver presence and caregiver capacity with patient outcomes will be examined in a series of regression models, and mediating and moderating factors will be tested. ETHICS AND DISSEMINATION: The Institutional Review Board at Northwestern University has approved the study protocol (STU00026255). Results will be published in peer-reviewed journals and summaries will be provided to the funders of the study as well as patients and caregivers.

Indexed as

CaregiversHealth LiteracyAgedCognitionCohort StudiesHumansInfantProspective StudiesSelf CareAgingGERIATRIC MEDICINEINTERNAL MEDICINEPUBLIC HEALTHSelf Care

Identifiers

PMID37857547
PMCPMC10603521

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.