ArticleAutism : the international journal of research and practice2024
Barriers to healthcare and a 'triple empathy problem' may lead to adverse outcomes for autistic adults: A qualitative study.
Article in Autism : the international journal of research and practice, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 47 papers.
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Who cites it
47 citing papers in PubMed.
- Feasibility Study of a Novel App-Based Anxiety Intervention for Autistic People.Autism research : official journal of the International Society for Autism Research · 2026Trial
- Autism and Dementia: A Summative Report from the 2nd International Summit on Intellectual Disabilities and Dementia.Journal of autism and developmental disorders · 2026Review
- Health Care Transition Experiences for Rural and Urban Autistic Adolescents and Young Adults: A Qualitative Analysis.Autism : the international journal of research and practice · 2026Article
- The Autistic Parenting Journey: A Systematic Review of Qualitative Evidence and Thematic Meta-Synthesis.Autism in adulthood · 2026Article
- A Cross-Neurotype Analysis of Camouflaging and Illness Perceptions in People with Central Sensitivity Syndromes.Autism in adulthood · 2026Article
- Perspectives of Autistic People, Parents, and Healthcare Professionals on Communication in Healthcare Settings and Related Needs in Georgia: A Qualitative Study.Journal of autism and developmental disorders · 2026Article
- From Participants to Community Partners: A Novel Community-Based Participatory Research (CBPR) Approach to Autistic-Led Inquiry in Digital and Virtual Environments.Healthcare (Basel, Switzerland) · 2026Article
- Strategies to enable workplaces to support autistic clinicians in the dental workforce: learnings from the Buckland Review of Autism Employment.British dental journal · 2026Review
- 'Bridging the gap': exploring shared decision-making with autistic young people within an NHS Learning Disability and Autism Keyworker Programme in England.BMC health services research · 2026Article
- Why We Need More Autistic Health Care Professionals and How to Support Them.Autism in adulthood · 2026Article
- Understanding phenomenological experiences of autistic inertia using online community discourse.Communications psychology · 2026Article
- Racial disparities in depression and mental health service use among black and white autistic adults.Scientific reports · 2026Article
- The experiences of autistic medical students in relation to seeking and receiving online support: A phenomenological study.PloS one · 2026Article
- Understanding eye care access for autistic adults and families: A convergent mixed-methods study.Autism : the international journal of research and practice · 2026Article
- "I had this fear that as an autistic person, they would take me less seriously": Trans autistic experiences of epistemic (in)justice in gender-affirming care.International journal of transgender health · 2026Article
- The healthcare experiences of middle and older age autistic women in the United Kingdom.Autism : the international journal of research and practice · 2026Article
- Misunderstood, Minimised, Misrepresented: Autistic Young Adults' Experiences of Epistemic Injustices in Healthcare Interactions Around Autism.Sociology of health & illness · 2026Article
- Enhancing inclusion of neurodivergent participants in medical research: an intersectional inclusion-by-design approach.Frontiers in medicine · 2026Article
- A thematic analysis of the views of neurodivergent women with a personality disorder diagnosis on clinical pathways within mental health services.Discover mental health · 2025Article
- Undergraduate medical education for neurodivergent students: a scoping review.BMC medical education · 2025Article
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
lay abstractAutistic people live with more mental and physical health conditions and, on average, die younger than non-autistic people. Despite widespread commitments to tackling these issues, autistic people still report various barriers to accessing healthcare. This article aims to explore the area in depth, from the perspective of autistic people. This research benefits from being led by autistic people, for autistic people - all of the researchers are autistic, and most of us are also medical doctors. Data, in the form of written comments and stories, were collected as part of a large survey. Here, we explored these for common themes and possible deeper meaning within the experiences. People who took part reported a variety of barriers. Here, our article gives voice to their stories, in their own words. Themes included: early barriers; communication mismatch; doubt - in oneself and from doctors; helplessness and fear; and healthcare avoidance and adverse health outcomes. Our findings allowed us to create a model that aimed to understand and explain the reported barriers in the context of the previously known consequences. We also built on wider autism theories to explain our findings in more depth.
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