Evidence map›Paper›PMID 37846403›Full record

ArticleDigital health

Improving the lives of ethnically diverse family carers and people living with dementia using digital media resources - Protocol for the Draw-Care randomised controlled trial.

Antonia Thodis, Thu-Ha Dang, Josefine Antoniades, Andrew S Gilbert, Tuan Nguyen, Danijela Hlis, Mary Gurgone, Briony Dow, Claudia Cooper, Lily-Dongxia Xiao and 7 more

Abstract read
In one paragraph

Article in Digital health. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors.

Antonia ThodisNational Ageing Research Institute, Parkville, Australia.
Thu-Ha DangNational Ageing Research Institute, Parkville, Australia.ORCID https://orcid.org/0000-0001-9105-6920
Josefine AntoniadesNational Ageing Research Institute, Parkville, Australia.
Andrew S GilbertNational Ageing Research Institute, Parkville, Australia.
Tuan NguyenNational Ageing Research Institute, Parkville, Australia.
Danijela HlisNational Ageing Research Institute, Parkville, Australia.
Mary GurgoneNational Ageing Research Institute, Parkville, Australia.
Briony DowNational Ageing Research Institute, Parkville, Australia.
Claudia CooperQueen Mary University of London, London, UK.
Lily-Dongxia XiaoFlinders University, Adelaide, Australia.
Nilmini WickramasingheSwinburne University of Technology, Hawthorn, Australia.
Nalika UlapaneSwinburne University of Technology, Hawthorn, Australia.
Mathew VargheseSt John's Medical College, Bangalore, India.
Santosh LoganathanNational Institute of Mental Health and Neurosciences, Bangalore, India.
Joanne EnticottGlobal and Women's Health, School of Public Health and Preventive Medicine, Monash University Clayton, Australia.
Duncan MortimerGlobal and Women's Health, School of Public Health and Preventive Medicine, Monash University Clayton, Australia.
Bianca BrijnathNational Ageing Research Institute, Parkville, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objectives: Ethnically diverse family carers of people living with dementia (hereafter carers and people with dementia) experience more psychological distress than other carers. To reduce this inequality, culturally adapted, multilingual, evidence-based practical assistance is needed. This paper details the Draw-Care study protocol including a randomised control trial (RCT) to test the effectiveness of a digital intervention comprising a multilingual website, virtual assistant, animated films, and information, on the lives of carers and people with dementia in Australia. Methods: The Draw-Care intervention will be evaluated in a 12-week active waitlist parallel design RCT with 194 carers from Arabic, Cantonese, Greek, Hindi, Italian, Mandarin, Spanish, Tamil, and Vietnamese-speaking language groups. Our intervention was based on the World Health Organization's (WHO) iSupport Lite online carer support messages and was co-designed with carers, people with dementia, service providers, and clinicians. Culturally adapted multilingual digital resources were created in nine languages and English. Results: In Phase I (2022), six co-design workshops with stakeholders and interviews with people with dementia informed the development of the intervention which will be trialled and evaluated in Phases II and III (2023 and 2024). Conclusions: Digital media content is a novel approach to providing cost-effective access to health care information. This study protocol details the three study phases including the RCT of a co-designed, culturally adapted, multilingual, digital intervention for carers and people with dementia to advance the evidence in dementia and digital healthcare research and help meet the needs of carers and people with dementia in Australia and globally.

Indexed as

animationAustraliacarerdementiadigital healthethnic minorityiSupport Lite

Identifiers

PMID37846403
PMCPMC10576921

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.