Evidence map›Paper›PMID 37845634›Full record

ArticleBMC geriatrics2023

Good death for people living with dementia: a qualitative study.

Md Razib Mamun, Yoshihisa Hirakawa, K M Saif-Ur-Rahman, Young Jae Hong, Zean Song, Yuko Yoshida, Hiroshi Yatsuya

Open access · goldAbstract read
In one paragraph

Article in BMC geriatrics, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
2.0field-weighted citation impact, top 13% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 7 citations in OpenAlex.

  1. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 1 institution in 3 countries.

Md Razib MamunDepartment of Public Health and Health Systems, Graduate School of Medicine, Nagoya University, Nagoya, Japan.
Yoshihisa HirakawaDepartment of Public Health and Health Systems, Graduate School of Medicine, Nagoya University, Nagoya, Japan. y.hirakawa@med.nagoya-u.ac.jp.
K M Saif-Ur-RahmanDepartment of Public Health and Health Systems, Graduate School of Medicine, Nagoya University, Nagoya, Japan.
Young Jae HongDepartment of Public Health and Health Systems, Graduate School of Medicine, Nagoya University, Nagoya, Japan.
Zean SongDepartment of Public Health and Health Systems, Graduate School of Medicine, Nagoya University, Nagoya, Japan.
Yuko YoshidaDepartment of Public Health and Health Systems, Graduate School of Medicine, Nagoya University, Nagoya, Japan.
Hiroshi YatsuyaDepartment of Public Health and Health Systems, Graduate School of Medicine, Nagoya University, Nagoya, Japan.
Nagoya University · JP

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundEnsuring a good death is one of the primary objectives of palliative care and end-of-life care. There is insufficient evidence regarding what defines a good death for people living with dementia. Obtaining an understanding of what constitutes a good death could help improve dementia care. This study aimed to explore how multiple stakeholders perceive a good death for people living with dementia.

methodsThis qualitative study was carried out across six prefectures in Japan. Enrollment of participants took place within dementia outpatient clinics, hospitals, daycare centers, and community centers. A total of thirty-three in-depth interviews with people living with dementia, physicians, and nurses were conducted. Six focus group discussions were performed with family caregivers and care workers. Verbatim transcripts of the interviews were prepared, and inductive content analysis was used to examine the data.

findingsRegarding the perception of a good death, the following themes were derived: (1) painless death; (2) dying in a preferred environment; (3) family's coping with loss; (4) maintaining regular life; (5) living with respect; and (6) preparation for death. All these themes are interrelated. Participants viewed a good death as a process rather than a single event.

conclusionThis study identifies crucial components of a good death for people living with dementia. The findings could be used to improve dementia care.

Indexed as

DementiaTerminal CareCaregiversFocus GroupsHumansPalliative CareQualitative ResearchDementiaEnd-of-lifeGood deathOlder peopleQualitative research

Identifiers

PMID37845634
PMCPMC10580641
OpenAlexW4387666581

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.