Evidence map›Paper›PMID 37842838›Full record

ArticleInternational journal of technology assessment in health care2023

Ethical and legal considerations in social media research for health technology assessment: conclusions from a scoping review.

Anke-Peggy Holtorf, Andriy Danyliv, Annekatrin Krause, Alissa Hanna, Yvette Venable, T Joseph Mattingly, Li-Ying Huang, Miranda Pierre, Aline Silveira Silva, Donna Walsh

Abstract readScoping Review
In one paragraph

Article in International journal of technology assessment in health care, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Article
  2. Article
  3. Review
  4. Two decades of impact: lessons from the HTAi Patient and Citizen Involvement in HTA Interest Group.International journal of technology assessment in health care · 2026
    Article
  5. Review
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Anke-Peggy HoltorfPCIG Project Coordinator, Health Outcomes Strategies GmbH, Basel, Switzerland.ORCID https://orcid.org/0000-0002-4638-5351
Andriy DanylivNovartis Pharma AG, Basel, Switzerland.ORCID https://orcid.org/0000-0003-3382-5976
Annekatrin KrausePatient Advocacy Europe, Novartis, Basel, Switzerland.
Alissa HannaPatient Engagement, Edwards Lifesciences, Irvine, CA, USA.ORCID https://orcid.org/0000-0001-7246-2843
Yvette VenablePatient Engagement, ICER, Boston, MA, USA.
T Joseph MattinglyCollege of Pharmacy, University of Utah, Salt Lake City, UT 84112, USA.ORCID https://orcid.org/0000-0001-7786-5780
Li-Ying HuangDivision of Health Technology Assessment, Center for Drug Evaluation, Taipeh, Taiwan.ORCID https://orcid.org/0000-0002-5699-509X
Miranda PierreScottish Medicines Consortium, Healthcare Improvement Scotland, Glasgow, Scotland.
Aline Silveira SilvaPatient Partner, Patient Voices Network, Vancouver, Canada.ORCID https://orcid.org/0000-0002-5571-9077
Donna WalshEuropean Federation of Neurological Associations, Brussels, Belgium.

Funding

Health Technology Assessment international (Publication Fees)Novartis (Writing support)
6 · The paper itself

Abstract

objectivesThe objective was to identify and describe the published guidance and current academic discourse of ethical issues and standards related to the use of

methodsA scoping review of the literature was conducted in PubMed and Embase and identified 935 potential references published between January 2017 and June 2021. After title and abstract screening by three reviewers, 40 publications were included, the relevant information was extracted and data were collected in a mind map, which was then used to structure the output of the review.

results

conclusionsAn actively engaged approach to ensuring ethical innocuousness is recommended that carefully follows best practices throughout planning, conduct, and communication of the research. Throughout the process and as a follow-up, there should be a discourse with the ethical experts to maximally protect the current and future users of social media, to support their trust in the research, and to advance the knowledge in parallel to the advancement of the media themselves, the technologies, and the research tools.

Indexed as

Social MediaBiomedical TechnologyConfidentialityHealth PolicyHumansPrivacyethicshealth technology assessmentprivacysocial media listeningsocial media research

Identifiers

PMID37842838
PMCPMC11570170

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.