ArticleJournal of pediatric psychology2024
Psychological Distress Among Parents of Children With Chronic Health Conditions and Its Association With Unmet Supportive Care Needs and Children's Quality of Life.
Article in Journal of pediatric psychology, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
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Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it, 26 citations in OpenAlex.
- Screening parents of children with a chronic condition for mental health problems: a systematic review.Archives of disease in childhood · 2025Pooled it
- Integrating optimal patient-centered care: patient- and family-reported experiences after complex treatment for rare diseases.World journal of pediatrics : WJP · 2026Article
- Impact of childhood and parental smoking and substance use on nephrotic syndrome outcomes: a prospective cohort study.Pediatric nephrology (Berlin, Germany) · 2026Article
- Prevalence and Trajectory of Household Material Hardship Among Children With Advanced Cancer.Pediatric blood & cancer · 2026Article
- Article
- The Development and Co-Production of a Caregiver Coping Resource for Pediatric Inflammatory Bowel Disease and Autoimmune Liver Disease.Learning health systems · 2026Article
- Mental health among caregivers of children with nephrotic syndrome: a prospective cohort study.Pediatric nephrology (Berlin, Germany) · 2026Observational
- Societal costs associated with mothers of children with major congenital anomalies: a population-based matched cohort study in Denmark.BMJ public health · 2026Article
- Article
- Dyadic Mental Health in Paediatric Congenital Heart Disease: Actor-Partner Associations Between Child HRQoL/Depression and Caregiver Stress Across Lesion Severity.Healthcare (Basel, Switzerland) · 2025Article
- Longitudinal psychological well-being in caregivers of young children with cleft lip and/or palate.Journal of pediatric psychology · 2025Article
- Transition from pediatric to adult cardiology care in congenital heart disease: contemporary considerations.European journal of pediatrics · 2025Review
- Breaking the cycle: Psychological and social dimensions of pediatric functional gastrointestinal disorders.World journal of clinical pediatrics · 2025Article
- Self-compassion in parents of children with chronic illnesses: A concept analysis.Belitung nursing journal · 2025Article
- "AJP reports · 2025Article
- Quality of life in children at different stages of chronic kidney disease in a developing country.Pediatric nephrology (Berlin, Germany) · 2025Article
- Navigating the Challenges and Resilience in the Aftermath of the COVID-19 Pandemic in Adolescents with Chronic Diseases: A Scoping Review.Children (Basel, Switzerland) · 2024Article
- Caregiver perspectives on barriers and facilitators to pediatric intestinal failure quality of life.Intestinal Failure (New York, N.Y.)Article
Corrections and comments
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Authors and funding
5 authors at 1 institution in 1 country.
Funding
Abstract
objectiveTo assess parent psychological distress in families of children with common chronic health conditions (CHC) and to explore relationships between parent psychological distress, unmet supportive care needs and children's quality of life (QoL).
methodCross-sectional study involving parents of children diagnosed with a common CHC between 0 and 12 years of age and who had received treatment within the last 5 years. Eligible parents completed an online survey, that included the Depression Anxiety Stress Scale (DASS-21) assessing distress in parents and a 34-item assessment of unmet supportive care needs across 6 domains. Parents completed ratings of their child's current functioning (QoL) using the 23-item PedsQL. Multivariable regression models examined the relative association between unmet needs, children's QoL and parents' depression, anxiety, and stress.
resultsThe sample consisted of 194 parents of children with congenital heart disease (n=97; 50%), diabetes (n=50; 26%), cancer (n=39; 20%), and asthma (n=8; 4%). A significant proportion of parents had moderate-severe symptoms of depression (26%), anxiety (38%), and stress (40%). Of the PedsQL scales, the poorest outcomes were found for emotional and school functioning. Multivariable analyses showed that both higher unmet needs and poorer child emotional functioning were associated with parent depression, anxiety, and stress symptoms.
conclusionEvidence linking parent distress symptoms to higher unmet needs and poorer child emotional functioning suggests these factors may be targets for interventions to alleviate parent distress. Longitudinal research using larger samples is required to replicate findings, and clarify the magnitude and direction of associations.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.