ArticleHealthcare (Basel, Switzerland)2023
What Are the Best Practices for Co-Creating Patient-Facing Educational Materials? A Scoping Review of the Literature.
Article in Healthcare (Basel, Switzerland), 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
What it found
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Who cites it
20 citing papers in PubMed.
- Co-creating an action to promote health literacy among parents with immigrant backgrounds.BMC health services research · 2026Article
- Why patient organizations are important to improve care for people with Lynch syndrome.Familial cancer · 2026Article
- 'Living Well With a PICC at Home': Co-Design and Evaluation of a Peripherally Inserted Central Catheter (PICC) Booklet.Journal of advanced nursing · 2026Article
- Supporting Informed Surrogate Decision-Making in Deceased Donor Intervention Research: Co-Creating Educational Materials With Families.Critical care explorations · 2026Article
- From patients to partners: evaluating a co-designed website for congenital hypogonadotropic hypogonadism.Endocrine connections · 2026Article
- Integrating trust into artificial intelligence for medicine: using diabetes as the exemplar disease.Journal of translational medicine · 2026Article
- Co-designing animated videos to explain large language models and their use in healthcare and research.Frontiers in digital health · 2026Article
- Article
- Physician Feedback Reduces Antibiotic Prescribing for Uncomplicated Upper Respiratory Tract Infection in the Emergency Department.Antibiotics (Basel, Switzerland) · 2025Article
- Patient education and self-management in interstitial lung disease: why and what, now how?ERJ open research · 2025Article
- Update on Physical, Psychological, and Quality of Life Management in Klinefelter Syndrome.The Journal of clinical endocrinology and metabolism · 2025Review
- Nursing's Role in Advancing Care for Rare Genetic Diseases.The Nursing clinics of North America · 2025Review
- The behavioural and cognitive impacts of digital educational interventions in the emergency department: A systematic review.PLOS digital health · 2025Article
- An Exploration of the Content and Language Used in Publicly Available National Health Service Patient Information Leaflets for People Considering Shoulder Replacement Surgery: A Qualitative Study.Musculoskeletal care · 2025Article
- Online physical activity resources for individuals with rheumatoid arthritis: an environmental scan and quality appraisal.BMJ open · 2025Review
- Improving Patient Education Materials for HPV Self-Collection: Insights from Women at High Risk of Developing Cervical Cancer.Cancer management and research · 2025Article
- Preferences for gene therapy in Duchenne muscular dystrophy: insights from patient and caregiver interviews and attribute development.Frontiers in pharmacology · 2025Article
- Towards a New Integrated Model for Taking Into Account the Experiential Knowledge of People With Chronic Diseases, Integrating Mediation, Therapeutic Education and Partnership: The Expanded Chronic Care Patient-Professional Partnership Model.Health expectations : an international journal of public participation in health care and health policy · 2024Review
- Consumer-oriented (patient and family) outcomes from nursing in genomics: a scoping review of the literature (2012-2022).Frontiers in genetics · 2024Article
- Lower Healthcare Access and Its Association With Individual Factors and Health-Related Quality of Life in Adults With Rare Diseases in Switzerland.International journal of public health · 2024Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
Co-creating patient-facing educational materials (PEMs) can enhance person-centered care by responding to patient priorities and unmet needs. Little data exist on 'best practices' for co-creation. We followed the Arksey and O'Malley framework to conduct a systematic literature search of nine databases (MEDLINE, PubMed, EMBASE, CINAHL, PsycINFO, Web of Science, Cochrane Library, Joanna Briggs Institute, TRIP-April, 2022) to identify empirical studies published in English on PEM co-creation to distill 'best practices'. Following an independent dual review of articles, data were collated into tables, and thematic analysis was employed to synthesize 'best practices' that were validated by a patient experienced in co-creating PEMs. Bias was not assessed, given the study heterogeneity. Of 6998 retrieved articles, 44 were included for data extraction/synthesis. Studies utilized heterogeneous methods spanning a range of health conditions/populations. Only 5/45 (11%) studies defined co-creation, 14 (32%) used a guiding framework, and 18 (41%) used validated evaluation tools. Six 'best practices' were identified: (1) begin with a review of the literature, (2) utilize a framework to inform the process, (3) involve clinical and patient experts from the beginning, (4) engage diverse perspectives, (5) ensure patients have the final decision, and (6) employ validated evaluation tools. This scoping review highlights the need for clear definitions and validated evaluation measures to guide and assess the co-creation process. Identified 'best practices' are relevant for use with diverse patient populations and health issues to enhance person-centered care.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.