Evidence map›Paper›PMID 37821914›Full record

ArticleResearch involvement and engagement2023

Involving patients in healthcare research is well documented but can it work in lab-based research?

Adele E Connor, Claire Hughes, Lea Schäfer, Lorraine McNally, Deirdre O' Raw, Katayoun Bahramian, Bridget Carr, Ingrid Halligan Dunne, Joanne Lysaght, Sharon A O' Toole and 2 more

Open access · goldAbstract readLetter
In one paragraph

Article in Research involvement and engagement, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
0.9field-weighted citation impact, top 22% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 2 citations in OpenAlex.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 2 institutions in 1 country.

Adele E ConnorSchool of Biology and Environmental Science, University College Dublin, Dublin, Ireland. adele.connor@ucdconnect.ie.
Claire HughesSchool of Biology and Environmental Science, University College Dublin, Dublin, Ireland.
Lea SchäferSchool of Biology and Environmental Science, University College Dublin, Dublin, Ireland.
Lorraine McNallyOvaCare, Cork, Ireland.
Deirdre O' RawOvaCare, Cork, Ireland.
Katayoun BahramianOvaCare, Cork, Ireland.
Bridget CarrOvaCare, Cork, Ireland.
Ingrid Halligan DunneOvaCare, Cork, Ireland.
Joanne LysaghtCancer Immunology and Immunotherapy Group, Department of Surgery, Trinity Translational Medicine Institute, Trinity College Dublin, Dublin, Ireland.
Sharon A O' TooleDepartment Obstetrics and Gynaecology, Trinity College Dublin, Dublin, Ireland.
Jeremy C SimpsonSchool of Biology and Environmental Science, University College Dublin, Dublin, Ireland.
Antoinette S PerrySchool of Biology and Environmental Science, University College Dublin, Dublin, Ireland.
University College Dublin · IETrinity College Dublin · IE

Funding

Irish Cancer Society CRS20CONIrish Cancer Society PPI22HUG
6 · The paper itself

Abstract

Public and Patient Involvement in research is becoming a requirement on most research funding applications; this includes both healthcare and lab-based research. Whilst case studies and practical guides have been developed and are well documented for PPI in healthcare research, there is very little guidance available for PPI in lab-based research. In this piece we discuss our experience of how we have successfully involved patients in our translational cancer research, which is focused on developing personalised treatment for high-grade serous ovarian cancer. We discuss the benefits it has made to both our research and to us as researchers. The patients involved write about their experience, what they enjoyed, and the benefits they felt. Although PPI is quite topical and is being widely discussed, there is hesitancy among researchers, especially those in lab-based research about getting started because of a lack of practical guidance about how to implement it. Here, we have shared our experience, hopefully providing a practical example of how PPI can be incorporated into a lab-based research project.

Indexed as

Ovarian cancerPPIPrecision medicineTranslational research

Identifiers

PMID37821914
PMCPMC10568930
OpenAlexW4387517593

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.