Evidence map›Paper›PMID 37819416›Full record

ArticleJournal of patient-reported outcomes2023

Translation, cultural adaptation, and psychometric testing of the Supportive care needs survey for partners and caregivers for Swedish family members of persons diagnosed with colorectal cancer.

Maria Samuelsson, Anne Wennick, Mariette Bengtsson, Marie-Louise Lydrup, Jenny Jakobsson

Open access · goldAbstract read
In one paragraph

Article in Journal of patient-reported outcomes, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
1.2field-weighted citation impact, top 18% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 5 citations in OpenAlex.

  1. Article
  2. Mapping Caregiver Needs' Assessment Tools for Family and Friend Caregivers: A Rapid Scoping Review.International journal of environmental research and public health · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 2 institutions in 1 country.

Maria SamuelssonFaculty of Health and Society, Department of Care Science, Malmö University, Jan Waldenströms gata 25, 205 06, Malmö, Sweden. maria.samuelsson@mau.se.ORCID 0000-0001-8700-4490
Anne WennickFaculty of Health and Society, Department of Care Science, Malmö University, Jan Waldenströms gata 25, 205 06, Malmö, Sweden.
Mariette BengtssonFaculty of Health and Society, Department of Care Science, Malmö University, Jan Waldenströms gata 25, 205 06, Malmö, Sweden.
Marie-Louise LydrupDepartment of Surgery and Gastroenterology, Skåne University Hospital, Malmö, Sweden.
Jenny JakobssonFaculty of Health and Society, Department of Care Science, Malmö University, Jan Waldenströms gata 25, 205 06, Malmö, Sweden.
Malmö University · SESkåne University Hospital · SE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundColorectal cancer is the third most common cancer diagnosis globally and is increasing in both incidence and prevalence. Despite evidence showing that family members of persons diagnosed with cancer have supportive care needs, no validated questionnaire measuring the needs of family members of persons diagnosed with CRC exists in Swedish. Thus, the objective of the present study was to translate, culturally adapt, and evaluate the psychometric properties the Supportive Care Needs Survey - Partners and Caregivers 45.

methodsThe translation and cultural adaptation followed a systematic yet iterative process. Firstly, the questionnaire was translated using a forward-backward approach. Secondly, face and content validity and comprehensibility were evaluated by two expert panels of colorectal cancer specialist nurses and family members, respectively. Lastly, the psychometric properties, validity, and reliability of the translated questionnaire were evaluated among 45 Swedish family members of persons diagnosed with colorectal cancer.

resultsThe face, content, and construct validity of the translated questionnaire were evaluated as satisfying. Moreover, psychometric evaluations showed high data quality and satisfactory internal consistency. However, the results also revealed unsolved issues regarding relevance, targeting, and internal consistency, as well as a probable scaling failure.

conclusionThe translated and adapted questionnaire can be used to identify family members unmet needs of support throughout the colorectal cancer trajectory. The questionnaire showed promising validity and reliability in the target population. However, it needs to be further evaluated in a larger sample, preferably involving factor analysis and stability over time.

Indexed as

CaregiversColorectal NeoplasmsFamilyHumansPsychometricsReproducibility of ResultsSwedenCaregiversCognitive interviewsColorectal cancerFamily membersPsychometricsQuestionnaireSupportive care needsTranslationUnmet needsValidity

Identifiers

PMID37819416
PMCPMC10567617
OpenAlexW4387518246

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.