Evidence map›Paper›PMID 37803217›Full record

ArticleThe patient2023

Face Validity of Four Preference-Weighted Quality-of-Life Measures in Residential Aged Care: A Think-Aloud Study.

Lidia Engel, Leona Kosowicz, Ekaterina Bogatyreva, Frances Batchelor, Nancy Devlin, Briony Dow, Andrew S Gilbert, Brendan Mulhern, Tessa Peasgood, Rosalie Viney

Abstract read
In one paragraph

Article in The patient, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.

0numbers the graph read from it
0cells of the map it votes in
21citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

21 citing papers in PubMed.

  1. Trial
  2. Review
  3. Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Measuring outcomes for loneliness research: examining the appropriateness of the EQ-5D-5 L and EQ-HWB.The European journal of health economics : HEPAC : health economics in prevention and care · 2026
    Article
  10. Qualitative testing of the EQ-HWB-9 with a 'blank' EQ-HWB VAS and EQ-5D-5L with skin bolt-ons in a rare genetic skin disease population.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
  11. Article
  12. Article
  13. Article
  14. Review
  15. Use of the adult social care outcomes toolkit (ASCOT) in research studies: an international scoping review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
  16. Article
  17. Cognitive interviewing for assessing the content validity of older-person specific outcome measures for quality assessment and economic evaluation: a scoping review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
  18. The performance of the EQ-HWB-S as a measure of quality-of-life of caregivers in families that have experienced adverse events.The European journal of health economics : HEPAC : health economics in prevention and care · 2025
    Article
  19. Enhancing quality of life measurement: adapting the ASCOT easy read for older adults accessing social care.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Lidia EngelMonash University Health Economics Group, School of Public Health and Preventive Medicine, Monash University, Melbourne, VIC, Australia. Lidia.engel@monash.edu.ORCID 0000-0002-7959-3149
Leona KosowiczNational Ageing Research Institute, Parkville, VIC, Australia.
Ekaterina BogatyrevaMonash University Health Economics Group, School of Public Health and Preventive Medicine, Monash University, Melbourne, VIC, Australia.
Frances BatchelorNational Ageing Research Institute, Parkville, VIC, Australia.
Nancy DevlinThe University of Melbourne, Parkville, VIC, Australia.
Briony DowNational Ageing Research Institute, Parkville, VIC, Australia.
Andrew S GilbertNational Ageing Research Institute, Parkville, VIC, Australia.
Brendan MulhernThe Centre for Health Economics Research and Evaluation, University of Technology Sydney, Sydney, NSW, Australia.
Tessa PeasgoodThe University of Melbourne, Parkville, VIC, Australia.
Rosalie VineyThe Centre for Health Economics Research and Evaluation, University of Technology Sydney, Sydney, NSW, Australia.

Funding

EuroQol Research Foundation 150-RANational Health and Medical Research Council EL1 Investigator Grant
6 · The paper itself

Abstract

objectiveThere is an increased use of preference-weighted quality-of-life measures in residential aged care to guide resource allocation decisions or for quality-of-care assessments. However, little is known about their face validity (i.e., how understandable, appropriate and relevant the measures are 'on their face' when respondents complete them). The aim of this study was to assess the face validity of four preference-weighted measures (i.e., EQ-5D-5L, EQ-HWB, ASCOT, QOL-ACC) in older people living in residential aged care.

methodsQualitative cognitive think-aloud interviews were conducted using both concurrent and retrospective think-aloud techniques. To reduce burden, each resident completed two measures, with the four measures randomised across participants. Audio recordings were transcribed and framework analysis was used for data analysis, based on an existing framework derived from the Tourangeau four-stage response model.

resultsIn total, 24 interviews were conducted with residents living across three residential aged care facilities in Melbourne, Australia. Response issues were identified across all four measures, often related to comprehension and difficulty selecting a response level due to double-barrelled and ambiguous items that have different meanings in the residential aged care context. We also identified issues related to understanding instructions, non-adherence to the recall period, and noted positive responding that requires attention when interpreting the data.

conclusionsOur findings provide further evidence on the appropriateness of existing measures, indicating numerous response issues that require further research to guide the selection process for research and practice.

Indexed as

Quality of LifeAgedAustraliaHumansReproducibility of ResultsRetrospective StudiesSurveys and Questionnaires

Identifiers

PMID37803217
PMCPMC10570159

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.