ArticleBMJ open respiratory research2023
Patient perspectives on home-spirometry in interstitial lung disease: a qualitative co-designed study.
Article in BMJ open respiratory research, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
13 citing papers in PubMed, 14 citations in OpenAlex.
- "I Want to Spend My Time Living"-Experiences With a Digital Outpatient Service With a Mobile App for Tailored Care Among Adults With Long-Term Health Service Needs: Qualitative Study Using Thematic Analysis.Journal of medical Internet research · 2026Trial
- Comparing Approaches to Teaching Patients How to Use an App-Based Home Spirometer: Randomized Controlled Trial.JMIR formative research · 2025Trial
- Feasibility of Home-Based Spirometry Monitoring as a Decentralized Clinical Trial Component in Patients with Chronic Obstructive Pulmonary Disease and Other Respiratory Diseases.Healthcare (Basel, Switzerland) · 2026Article
- Digital diagnostics, biomarkers and therapeutics in an evolving healthcare system: From promise to practice.British journal of clinical pharmacology · 2026Review
- Healthcare professionals' perspectives on implementation of home monitoring in individuals with pulmonary fibrosis.ERJ open research · 2026Article
- A randomised clinical trial of a digital self-management package for people with interstitial lung disease: the REBUILD-SM protocol.Respiratory research · 2025Article
- Home Monitoring in Interstitial Lung Disease: Protocol for a Real-World Observational Study.JMIR research protocols · 2025Article
- A lifestyle educational course as an adjunct to biologic administration in patients with severe asthma: A feasibility study.PEC innovation · 2025Article
- Assessment of Home-based Monitoring in Adults with Chronic Lung Disease: An Official American Thoracic Society Research Statement.American journal of respiratory and critical care medicine · 2025Article
- Home spirometry telemonitoring in pediatric patients with asthma: a mixed study.Frontiers in pediatrics · 2025Article
- The role of digital health in respiratory diseases management: a narrative review of recent literature.Frontiers in medicine · 2025Review
- Supporting self-management for patients with Interstitial Lung Diseases: Utility and acceptability of digital devices.PLOS digital health · 2024Article
- Experiences of systemic sclerosis patients with home monitoring of their pulmonary function: a qualitative study.Rheumatology advances in practice · 2024Article
Corrections and comments
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Authors and funding
20 authors at 3 institutions in 1 country.
Funding
Abstract
backgroundOpportunities for home-monitoring are increasing exponentially. Home- spirometry is reproducible and reliable in interstitial lung disease (ILD), yet patients' experiences are not reported. Given the morbidity and mortality associated with ILDs, maintaining health-related quality-of-life is vital. We report our findings from a codesigned, qualitative study capturing the perspectives and experiences of patients using home-spirometry in a UK regional ILD National Health Service England (NHSE) commissioned service.
methodsPatients eligible for home-spirometry as routine clinical care, able to give consent and able to access a smart phone were invited to participate. In-depth, semistructured interviews were conducted at serial time points (baseline, 1, 3 and 6 months), recorded, transcribed and analysed thematically.
resultsWe report on the experiences of 10 recruited patients (8 males; median age 66 years, range 50-82 years; 7 diagnosed with idiopathic pulmonary fibrosis, 3 other ILDs) who generally found spirometry convenient and easy to use, but their relationships with forced vital capacity results were complex. Main themes emerging were: (1) anticipated benefits-to identify change, trigger action and aid understanding of condition; (2) needs-clinical oversight and feedback, understanding of results, ownership, need for data and a need 'to know'; (3) emotional impact-worry, reassurance, ambivalence/conflicting feelings, reminder of health issues, indifference; (4) ease of home-spirometry-simplicity, convenience and (5) difficulties with home-spirometry-technical issues, technique, physical effort.
conclusionHome-spirometry has many benefits, but in view of the potential risks to psychological well-being, must be considered on an individual basis. Informed consent and decision-making are essential and should be ongoing, acknowledging potential limitations as well as benefits. Healthcare support is vital.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.