Evidence map›Paper›PMID 37779815›Full record

ArticleCureus2023

Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda.

Emily Hotez, Madeline Haley, Julian A Martinez-Agosto, Jeffrey Anderson, Heather Brown, Kristen Choi, Lisa A Croen, Patrick Dwyer, Priyanka Fernandes, Dena Gassner and 18 more

Abstract read
In one paragraph

Article in Cureus, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

28 authors.

Emily HotezDepartment of Medicine, University of California Los Angeles, Los Angeles, USA.
Madeline HaleyDepartment of Medicine, University of California Los Angeles, Los Angeles, USA.
Julian A Martinez-AgostoDepartment of Medicine, University of California Los Angeles, Los Angeles, USA.
Jeffrey AndersonDepartment of Medicine, University of California Los Angeles, Los Angeles, USA.
Heather BrownDepartment of Educational Psychology, Faculty of Education, Edmonton, CAN.
Kristen ChoiDepartment of Nursing, School of Nursing, University of California Los Angeles, Los Angeles, USA.
Lisa A CroenDivision of Research, Kaiser Permanente Northern California, Oakland, USA.
Patrick DwyerLaboratory of Neurocognitive Development, Center for Mind and Brain, University of California Davis, Davis, USA.
Priyanka FernandesDepartment of Medicine, University of California Los Angeles, Los Angeles, USA.
Dena GassnerDepartment of Health Sciences, School of Social Work, Adelphi University, New York, USA.
Morénike Giwa OnaiwuSchool of Humanities, University of East Anglia, Norwich, GBR.
Candace M GragnaniDepartment of Pediatrics, University of California Los Angeles, Los Angeles, USA.
Laura Graham HolmesDepartment of Social Work, School of Public Health, Boston University, Boston, USA.
Steven KappDepartment of Psychology, University of Portsmouth, Portsmouth, GBR.
Dana KimDepartment of Research, Association of University Centers on Disabilities, Silver Spring, USA.
Maria MassoloDepartment of Research, Kaiser Permanente Northern California, Oakland, USA.
Brianna MontgomeryDepartment of Medicine, University of California Los Angeles, Los Angeles, USA.
Heini M NatriDepartment of Computational Science, Translational Genomics Research Institute, Part of City of Hope Cancer Center, Phoenix, USA.
Julianna A RavaDepartment of Medicine, University of California Los Angeles, Los Angeles, USA.
Kashia A RosenauDepartment of Medicine, University of California Los Angeles, Los Angeles, USA.
Jeffrey RothDepartment of Medicine, University of California Los Angeles, Los Angeles, USA.
Dawn RudolphDepartment of Technical Assistance & Network Engagement, Association of University Centers on Disabilities, Silver Springs, USA.
Jackie G RyanDepartment of Neurodiversity Strategy and Education, University of Alberta, Faculty of Rehabilitation Medicine, Edmonton, USA.
Paul ShattuckDepartment of Policy Research, Mathematica, Princeton, USA.
Lindsay SheaCenter of Policy and Analytics, A.J. Drexel Autism Institute, Drexel University, Philadelphia, USA.
Zachary J WilliamsDepartment of Hearing & Speech Sciences, Vanderbilt Brain Institute, Vanderbilt University, Nashville, USA.
Rujuta B WilsonDepartment of Psychiatry, Semel Institute for Neuroscience and Human Behavior, Los Angeles, USA.
Alice KuoDepartment of Medicine, University of California Los Angeles, Los Angeles, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionAutistic individuals, now representing one in 36 individuals in the U.S., experience disproportionate physical health challenges relative to non-autistic individuals. The Health Resources and Services Administration's (HRSA) Autism Intervention Research Network on Physical Health (AIR-P) is an interdisciplinary, multi-center Research Network that aims to increase the health, well-being, and quality of life of autistic individuals. The current paper builds on the initial AIR-P Research Agenda (proposed in Year 1) and provides an updated vision for the Network.

methodsUpdates to the Research Agenda were made via the administration of a Qualtrics survey, and disseminated widely to all AIR-P entities, including the Research Node Leaders, Steering Committee, Autistic Researcher Review Board, and collaborating academic and non-academic entities. Network members were tasked with evaluating the Year 1 Research Agenda and proposing additional priorities.

resultsWithin each Research Node, all Year 1 priorities were endorsed as continued priorities for research on autism and physical health. Specific topics, including co-occurring conditions and self-determination, advocacy, and decision-making, were particularly endorsed. Opportunities for exploratory studies and intervention research were identified across Research Nodes. Qualitative responses providing feedback on additional research priorities were collected.

conclusionThe updated AIR-P Research Agenda represents an important step toward enacting large-scale health promotion efforts for autistic individuals across the lifespan. This updated agenda builds on efforts to catalyze autism research in historically underrepresented topic areas while adopting a neurodiversity-oriented approach to health promotion.

Indexed as

autismhealthmental healthneurodiversityresearch

Identifiers

PMID37779815
PMCPMC10541233

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.