ArticlePediatric blood & cancer2023
Financial burden and recommended multilevel solutions among caregivers of pediatric hematopoietic stem cell transplant recipients.
Article in Pediatric blood & cancer, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed.
- Behavioral and Psychological Financial Hardship Among Caregivers of Pediatric Cancer Patients.Cancer medicine · 2026Article
- Access Challenges in Allogeneic Hematopoietic Cell Transplant: Identifying At-Risk US States by Exploring Social Vulnerability, Physician Density, and Unmet Need.JCO oncology practice · 2026Article
- Perceptions of Proactive Palliative Care Integration Among Pediatric Hematopoietic Cell Transplant Providers: A Pilot Study.Children (Basel, Switzerland) · 2026Article
- The Caregiver Paradigm in Hematopoietic Cell Transplant: Current and Future Directions.Transplantation and cellular therapy · 2025Review
- Non-monetary burdens of out-of-pocket costs incurred by patients and caregivers for medical care: a scoping review.BMJ open · 2025Article
- Financial Distress Screening and Navigation in Pediatric Oncology Within the National Cancer Institute Community Oncology Research Program.JCO oncology practice · 2025Article
- Exploring the financial burden of pediatric bone marrow transplantation: a cross-sectional Study from the caregiver's viewpoint.BMC health services research · 2025Article
- A dyadic analysis of financial toxicity and health-related quality of life among bone marrow transplant patients and their caregivers.Psycho-oncology · 2024Article
Corrections and comments
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Authors and funding
10 authors.
Funding
Abstract
backgroundThe healthcare costs of patients who receive hematopoietic stem cell transplantation (HSCT) are substantial. At the same time, the increasing use of pediatric HSCT leaves more caregivers of pediatric HSCT recipients at risk for financial burden-an understudied area of research.
methodsFinancial burden experienced by caregivers of recipients who received autologous or allogeneic transplants was assessed using an explanatory mixed-methods design including a one-time survey and semi-structured interviews. Financial burden was assessed through an adapted COmprehensive Score for financial Toxicity (COST) as well as questions about the types of out-of-pocket costs and cost-coping behaviors. Chi-squared or Fisher's exact tests were used to assess differences in costs incurred and coping behaviors by financial toxicity and financial toxicity by demographic factors. Interviews were audio recorded, transcribed, and analyzed using directed content analysis.
resultsOf 99 survey participants, 64% experienced high financial toxicity (COST
conclusionsConsidering the substantial, long-term financial burden among pediatric HSCT patients and their caregivers, this population would benefit from adapted and tailored financial burden interventions.
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