ArticleAutism : the international journal of research and practice2024
Understanding the post-diagnostic support priorities of autistic adults in the United Kingdom: A co-produced modified Delphi study.
Article in Autism : the international journal of research and practice, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
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Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it, 24 citations in OpenAlex.
- Post-diagnostic support for adults diagnosed with autism in adulthood in the UK: A systematic review with narrative synthesis.Autism : the international journal of research and practice · 2025Pooled it
- "It Has Shown Me How Much I Am Capable Of": An Exploration of Autistic Burnout Experiences in Motherhood.Autism in adulthood · 2026Article
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- Contextual factors influencing neuro-affirming practice: Identifying what helps or hinders implementation in health and social care.Autism : the international journal of research and practice · 2025Article
- "One must think autism in everything one does": Clinicians' Experiences of Supporting Autistic Patients.Journal of autism and developmental disorders · 2025Article
- Diagnostic Experiences and Barriers to Diagnosis Among Autistic Adults in the United States: Associations with Diagnostic Timing and Gender.Journal of autism and developmental disorders · 2025Article
- 'Am I gonna regret this?': The experiences of diagnostic disclosure in autistic adults.Autism : the international journal of research and practice · 2025Article
- "I'm not feeling alone in my experiences": How newly diagnosed autistic adults engage with a neurodiversity-affirming "Welcome Pack".Autism : the international journal of research and practice · 2025Article
- A Pilot Study of Political Experiences and Barriers to Voting Among Autistic Adults Participating in Online Survey Research in the United States.Autism in adulthood · 2025Article
- A qualitative interview study on quality of life and ageing experiences of autistic adults.Communications psychology · 2024Article
- The Gestalt of functioning in autism revisited: First revision of the International Classification of Functioning, Disability and Health Core Sets.Autism : the international journal of research and practice · 2024Article
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
lay abstractAutistic adults in the United Kingdom report that support for themselves and their peers is not suitable for their needs. There has been an increase in adults receiving an autism diagnosis, which many have reported as having a positive impact on their lives. However, the lack of support and understanding after diagnosis, combined with long wait times for an assessment to obtain a diagnosis and to access follow-on support, is having a negative impact on people's lives. This study took place to find out what support autistic people need and want after receiving their diagnosis. It was co-designed with a group of 10 autistic adults which means that the researchers and group members collaboratively designed the research. For the study, 43 autistic adults, diagnosed aged 18 or older, completed three questionnaires. A fourth questionnaire followed that was completed by 139 autistic people who received their diagnosis in adulthood. These questionnaires aimed to help people identify their own priorities when it came to the support they would have liked to receive after being given their autism diagnosis. Participants ranked
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.