Evidence map›Paper›PMID 37773095›Full record

ArticleQualitative health research2023

Walking Alongside: Views of Family Members on Medical Assistance in Dying for Mental Illness as the Sole Underlying Medical Condition.

Hamer Bastidas-Bilbao, Vicky Stergiopoulos, Vivien Cappe, Mary Rose van Kesteren, Donna E Stewart, Mona Gupta, Alexander I F Simpson, Michael Dawthorne, Tarek K Rajji, David Castle and 1 more

Abstract read
In one paragraph

Article in Qualitative health research, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Comment on "Reflections on Medical Assistance in Dying (MAiD)".Academic psychiatry : the journal of the American Association of Directors of Psychiatric Residency Training and the Association for Academic Psychiatry · 2024
    Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Hamer Bastidas-BilbaoCentre for Addiction and Mental Health, Toronto, ON, Canada.ORCID 0000-0002-1103-6530
Vicky StergiopoulosCentre for Addiction and Mental Health, Toronto, ON, Canada.
Vivien CappeCentre for Addiction and Mental Health, Toronto, ON, Canada.
Mary Rose van KesterenCentre for Addiction and Mental Health, Toronto, ON, Canada.
Donna E StewartUniversity of Toronto, Toronto, ON, Canada.
Mona GuptaCentre Hospitalier de L'Université de Montréal, Montréal, QC, Canada.
Alexander I F SimpsonCentre for Addiction and Mental Health, Toronto, ON, Canada.
Michael DawthorneCentre for Addiction and Mental Health, Toronto, ON, Canada.
Tarek K RajjiCentre for Addiction and Mental Health, Toronto, ON, Canada.
David CastleUniversity of Tasmania, Hobart, TAS, Australia.
Lisa D HawkeCentre for Addiction and Mental Health, Toronto, ON, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Medical assistance in dying (MAiD) was introduced into Canadian federal legislation in 2016. Mental illness as the sole underlying medical condition (MI-SUMC) is currently excluded from eligibility; such exclusion is scheduled to expire on March 17, 2024. Irremediability, capacity, quality of life, autonomy, family involvement, and healthcare system constraints have been debated intensively. Recent studies have not explored the views of family members of persons with mental illness on MAiD MI-SUMC. This study aimed to fill this knowledge gap. Twenty-five Ontario residents who had a loved one with mental illness participated. A persona-scenario exercise was designed to explore participants' views on MAiD MI-SUMC in hypothetical situations. Reflexive thematic analysis was used to analyze the data. A lived experience-advisory panel was engaged throughout the study. Seven themes were developed: Witnessing suffering; A road with barriers and limitations; Societal barriers; The unknowns of mental illness; Individual choices: the life or death that a person wants; MAiD MI-SUMC as an acceptable choice when suffering cannot be relieved with available treatments and supports; and The emotional outcome. Participants constructed their views based on their experience of supporting a loved one with mental illness. MAiD MI-SUMC was perceived as a multifaceted issue, whose acceptability and potential introduction required a concurrent exploration and discussion of the challenges arising due to limitations of the healthcare system, the opportunities and limits to family involvement, and the value of patient autonomy.

Indexed as

Mental DisordersSuicide, AssistedCanadaFamilyHumansMedical AssistanceOntarioQuality of LifeWalkingcaregiversfamily engagementmedical assistance in dyingmental illnesspatient-oriented research

Identifiers

PMID37773095
PMCPMC10626980

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.