Evidence map›Paper›PMID 37771461›Full record

ArticlePEC innovation2023

An mHealth, patient engagement approach to understand and address parents' mental health and caregiving needs after prenatal diagnosis of critical congenital heart disease.

Anne Chevalier McKechnie, Kristin M Elgersma, Taylor Iwaszko Wagner, Anna Trebilcock, Jenna Damico, Alejandra Sosa, Matthew B Ambrose, Kavisha Shah, Aura A Sanchez Mejia, Karen F Pridham

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in PEC innovation, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Anne Chevalier McKechnieSchool of Nursing, Child and Family Health, University of Minnesota, Minneapolis, MN, USA.
Kristin M ElgersmaSchool of Nursing, Child and Family Health, University of Minnesota, Minneapolis, MN, USA.
Taylor Iwaszko WagnerSchool of Nursing, Child and Family Health, University of Minnesota, Minneapolis, MN, USA.
Anna TrebilcockSchool of Nursing, Child and Family Health, University of Minnesota, Minneapolis, MN, USA.
Jenna DamicoSchool of Nursing, Child and Family Health, University of Minnesota, Minneapolis, MN, USA.
Alejandra SosaSchool of Nursing, Child and Family Health, University of Minnesota, Minneapolis, MN, USA.
Matthew B AmbroseMedical School, Pediatrics-Cardiology, University of Minnesota, Minneapolis, MN, USA.
Kavisha ShahMedical School, Pediatrics-Cardiology, University of Minnesota, Minneapolis, MN, USA.
Aura A Sanchez MejiaBaylor College of Medicine, Pediatrics-Cardiology, Houston, TX, USA.
Karen F PridhamSchool of Nursing, University of Wisconsin, Madison, WI, USA.

Funding

Human Milk and Direct Breastfeeding for Infants with Single Ventricle Congenital Heart Disease: An Analysis of Prevalence, Supportive and Limiting Factors, and Impact on Key OutcomesF31NR020577 · NINR · UNIVERSITY OF MINNESOTA · PI ELGERSMA, KRISTIN M · 2022 to 2022
$49k
NINR NIH HHS F31 NR020577
6 · The paper itself

Abstract

Objective: To provide an overview of the development of the Preparing Heart and Mind™ (PHM™) care program designed for parents with a prenatal diagnosis of critical congenital heart disease (CCHD) and describe issues of parental concern, caregiving competencies, and type and timing of PHM™ topics. Methods: Guided participation theory underpinned intervention development and a mixed methods pilot of a novel, nurse-guided mHealth intervention. Parents were enrolled from the third trimester of pregnancy-12 weeks postnatally. Online surveys, session transcripts, and app use were descriptively analyzed. Results: The sample included 19 mothers/birthing persons and 15 caregiving partners randomized to the intervention group. In 49 sessions, mental health/wellbeing (94%) and condition-specific information (86%) were top issues. Many caregiving competencies were developed, with mothers/birthing persons often focused on feeding (86%). Regulating emotions and co-parenting consistently needed support. PHM™ topics of preparing for hospitalization (47%) and handling uncertainty (45%) were most discussed. Two cases further characterize findings. Conclusion: Nurse-parent collaborative understanding of issues emphasized the need for mental health assessments. Prenatal intervention opportunities were underscored through discussions of caregiving issues and PHM™ topics. Innovation: PHM™ represents an innovative approach that holds promise for supporting parents' mental health and caregiving needs outside the healthcare setting.

Indexed as

CongenitalFetusHeart defectsInfantMobile applicationsParentsPsychological distress

Identifiers

PMID37771461
PMCPMC10523263

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.