Evidence map›Paper›PMID 37771460›Full record

ArticlePEC innovation2023

Testing the

Erik K Fromme, Lauren Nisotel, Kimberly Mendoza, Ayush Thacker, Kurt Lowery, Bukiwe Sihlongonyane, Katherine O DeBartolo, Jane Roessner, Judy N Margo

Open access · goldAbstract read
In one paragraph

Article in PEC innovation, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
1.7field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 6 citations in OpenAlex.

  1. Article
  2. How Has 'What Matters to You' Been Used for Patient Care? A Scoping Review.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  3. Article
  4. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 6 institutions in 1 country.

Erik K FrommeSerious Illness Care Program, Ariadne Labs, Boston, MA, USA.
Lauren NisotelAmerican Cancer Society, Atlanta, GA, USA.
Kimberly MendozaHarvard T.H Chan School of Public Health, Boston, MA, USA.
Ayush ThackerBrandeis University, Waltham, MA.
Kurt LowerySerious Illness Care Program, Ariadne Labs, Boston, MA, USA.
Bukiwe SihlongonyaneBoston University School of Public Health, Boston, MA, USA.
Katherine O DeBartoloThe Conversation Project, Institute for Healthcare Improvement, Boston, MA, USA.
Jane RoessnerThe Conversation Project, Institute for Healthcare Improvement, Boston, MA, USA.
Judy N MargoScience & Technology Platform, Ariadne Labs, Boston, MA, USA.
Ariadne Diagnostics (United States) · USInstitute for Healthcare Improvement · USAmerican Cancer Society · USBoston University · USBrandeis University · USHarvard University · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objectives: We evaluated the Methods: We purposively recruited diverse seriously ill patients and caregivers in the US. Participants completed the Workbook, a survey, and a semi-structured in-depth interview about their experience. Qualitative analysis of interviews and notes was employed to extract themes. Simple descriptive statistics were employed to analyze eight investigator authored questions. Results: Twenty-nine study participants completed twenty-one interviews and twenty-five surveys. Ratings for safety (3.87/4, SD = 0.43) and acceptability (3.59/4, SD = 0.956) were higher than ratings for ease of use (3.30/4, SD = 0.97) and usefulness (3.24/4, SD = 0.80). Qualitative analysis identified that while the workbook was safe, acceptable, easy to use, and useful, it is more important who is recommending it and how they are explaining it. Conclusion: If presented in the right way by a trustworthy person, the Innovation: The Workbook focuses on serious illness rather than end-of-life and meshes with a clinician-facing conversation guide and a health-system level intervention.

Indexed as

Advance care planningCaregiversCommunicationGoal concordant carePatient educationSerious illness

Identifiers

PMID37771460
PMCPMC10523264
OpenAlexW4386797386

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.