ArticleChildren (Basel, Switzerland)2023
The Role of Distance from Home to Hospital on Parental Experience in the NICU: A Qualitative Study.
Article in Children (Basel, Switzerland), 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed, 12 citations in OpenAlex.
- Person-Centered Exploration of Neonatal Intensive Care Unit Stressors and Social Support in Parenting Very Preterm Infants: A Cross-Sectional Study on Risks and Resources in Italy and Portugal.Children (Basel, Switzerland) · 2026Article
- Barriers and facilitators to modeling safe sleep practices in the NICU: A qualitative study of nursing & parent perspectives.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Unrecognized and Unheard: Experiences of Black Mothers Navigating the "Good NICU Mother" Ideal Across the Preterm Birth Continuum.Research square · 2026Article
- Assessing Neonatal Transport, Health Outcomes, and Psychosocial Inequities Among Black, Very Preterm Infants and Their Families to Advance Health Equity: Protocol for a Mixed Methods Study.JMIR research protocols · 2026Article
- A quality improvement initiative to increase family engagement and reduce disparities in visitation via telehealth in a level III neonatal intensive care unit.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Parents' Experiences With an Early Behavioral Intervention, H-HOPE, in the NICU and at Home: A Qualitative Study.Advances in neonatal care : official journal of the National Association of Neonatal Nurses · 2025Article
- Inter-organizational pooling of NICU nurses in the Dutch neonatal network: a simulation-optimization study.Health care management science · 2025Article
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Prolonged admission to the neonatal intensive care unit presents challenges for families, especially those displaced far from home. Understanding specific barriers to parental engagement in the NICU is key to addressing these challenges with hospital-based interventions. The objective of this qualitative study was to explore the impact of distance from home to hospital on the engagement of parents of very preterm infants (VPT) in the neonatal intensive care unit (NICU). We used a grounded theory approach and conducted 13 qualitative interviews with parents of VPT who were admitted ≥14 days and resided ≥50 miles away using a semi-structured interview guide informed by the socio-ecological framework. We used constant comparative method with double coders for theme emergence. Our results highlight a multitude of facilitators and barriers to engagement. Facilitators included: (1) individual-delivery preparedness and social support; (2) environmental-medical team relationships; and (3) societal-access to perinatal care. Barriers included: (1) individual-transfer stressors, medical needs, mental health, and dependents; (2) environmental-NICU space, communication, and lack of technology; and (3) societal-lack of paid leave. NICU parents with geographic separation from home experienced a multitude of barriers to engagement, many of which could be addressed by hospital-based interventions.
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