Evidence map›Paper›PMID 37756051›Full record

ArticleJournal of medical Internet research2023

Ethical and Information Governance Considerations for Promoting Digital Social Interventions in Primary Care.

Georgios Dimitrios Karampatakis, Helen E Wood, Chris J Griffiths, Nathan C Lea, Richard E Ashcroft, Bill Day, Neil Walker, Neil S Coulson, Anna De Simoni

2 registry-linked trialsOpen access · goldAbstract read
In one paragraph

Article in Journal of medical Internet research, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
1.7field-weighted citation impact, top 17% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05829265 completednot on this map

Non-randomised Feasibility Study Testing a Primary Care Intervention to Promote Engagement in an Online Health Community (OHC) for Adults With Troublesome Asthma

TypeobservationalSponsorQueen Mary University of LondonRan2022 to 2024Enrolled526ConditionsAsthma Intermittent, UncontrolledArmsA digital social intervention by primary care clinicians.
NCT06849245 narecruitingnot on this mapstarted 2025, after this paper: background citation

Measuring Whether Promotion of a Digital Social Intervention by Primary Care Healthcare Professionals and Subsequent Engagement With Online Peer Support Improves Health and Well-being of Patients With Asthma and is Cost-effective: a Randomised Controlled Trial

TypeinterventionalSponsorQueen Mary University of LondonRan2025 to 2027Enrolled600ConditionsAsthma Intermittent, UncontrolledArmsA digital social intervention by primary care clinicians
3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 6 citations in OpenAlex.

  1. Review
  2. Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 4 institutions in 2 countries.

Georgios Dimitrios KarampatakisWolfson Institute of Population Health, Barts and The London School of Medicine and Dentistry, Asthma UK Centre for Applied Research, Queen Mary University of London, London, United Kingdom.ORCID 0000-0003-0623-8231
Helen E WoodWolfson Institute of Population Health, Barts and The London School of Medicine and Dentistry, Asthma UK Centre for Applied Research, Queen Mary University of London, London, United Kingdom.ORCID 0009-0008-6940-6427
Chris J GriffithsWolfson Institute of Population Health, Barts and The London School of Medicine and Dentistry, Asthma UK Centre for Applied Research, Queen Mary University of London, London, United Kingdom.ORCID 0000-0001-7935-8694
Nathan C LeaDepartment of Medical Informatics & Statistics, The European Institute for Innovation through Health Data, Ghent University Hospital, Ghent, Belgium.ORCID 0000-0001-5056-0602
Richard E AshcroftThe City Law School, City University of London, London, United Kingdom.ORCID 0000-0001-6065-4717
Bill DayWolfson Institute of Population Health, Barts and The London School of Medicine and Dentistry, Asthma UK Centre for Applied Research, Queen Mary University of London, London, United Kingdom.ORCID 0009-0004-6894-7716
Neil WalkerWolfson Institute of Population Health, Barts and The London School of Medicine and Dentistry, Asthma UK Centre for Applied Research, Queen Mary University of London, London, United Kingdom.ORCID 0000-0001-8265-518X
Neil S CoulsonMedical School, Nottingham City Hospital, Nottingham, United Kingdom.ORCID 0000-0001-9940-909X
Anna De SimoniWolfson Institute of Population Health, Barts and The London School of Medicine and Dentistry, Asthma UK Centre for Applied Research, Queen Mary University of London, London, United Kingdom.ORCID 0000-0001-6955-0885
Queen Mary University of London · GBCity, University of London · GBGhent University Hospital · BENottingham City Hospital · GB

Funding

NIHR / Department of Health and Social Care 202037
6 · The paper itself

Abstract

Promoting online peer support beyond the informal sector to statutory health services requires ethical considerations and evidence-based knowledge about its impact on patients, health care professionals, and the wider health care system. Evidence on the effectiveness of digital interventions in primary care is sparse, and definitive guidance is lacking on the ethical concerns arising from the use of social media as a means for health-related interventions and research. Existing literature examining ethical issues with digital interventions in health care mainly focuses on apps, electronic health records, wearables, and telephone or video consultations, without necessarily covering digital social interventions, and does not always account for primary care settings specifically. Here we address the ethical and information governance aspects of undertaking research on the promotion of online peer support to patients by primary care clinicians, related to medical and public health ethics.

Indexed as

Primary Health CareSocial MediaSocial SupportHumansPeer Groupdata governancedigital healthdigital interventiondigital social interventionsethicsinformation governanceonline health communitiespeer supportprimary caresocial intervention

Identifiers

PMID37756051
PMCPMC10568391
OpenAlexW4385415014

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.