Evidence map›Paper›PMID 37754538›Full record

ArticleCurrent oncology (Toronto, Ont.)2023

Prioritizing Solutions and Improving Resources among Young Pediatric Brain Tumor Survivors: Results of an Online Survey.

Marco Bonanno, Claude Julie Bourque, Lye-Ann Robichaud, Ariane Levesque, Ariane Lacoste-Julien, Émélie Rondeau, Émilie Dubé, Michelle Leblanc, Marie-Claude Bertrand, Carole Provost and 2 more

Abstract read
In one paragraph

Article in Current oncology (Toronto, Ont.), 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Review
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Marco BonannoHematology-Oncology Department, Sainte-Justine University Hospital Center, Montreal, QC H3T 1C5, Canada.ORCID 0000-0002-5816-0301
Claude Julie BourqueDepartment of Pediatrics, Université de Montréal, Montreal, QC H3T 1C5, Canada.ORCID 0000-0002-9407-0872
Lye-Ann RobichaudPsycho-Oncology Center (CPO), Sainte-Justine University Hospital Research Center, Montreal, QC H3T 1C5, Canada.ORCID 0000-0002-5530-0460
Ariane LevesquePsycho-Oncology Center (CPO), Sainte-Justine University Hospital Research Center, Montreal, QC H3T 1C5, Canada.
Ariane Lacoste-JulienPsycho-Oncology Center (CPO), Sainte-Justine University Hospital Research Center, Montreal, QC H3T 1C5, Canada.
Émélie RondeauPsycho-Oncology Center (CPO), Sainte-Justine University Hospital Research Center, Montreal, QC H3T 1C5, Canada.
Émilie DubéPsycho-Oncology Center (CPO), Sainte-Justine University Hospital Research Center, Montreal, QC H3T 1C5, Canada.
Michelle LeblancPsycho-Oncology Center (CPO), Sainte-Justine University Hospital Research Center, Montreal, QC H3T 1C5, Canada.
Marie-Claude BertrandHematology-Oncology Department, Sainte-Justine University Hospital Center, Montreal, QC H3T 1C5, Canada.
Carole ProvostHematology-Oncology Department, Sainte-Justine University Hospital Center, Montreal, QC H3T 1C5, Canada.
Leandra DesjardinsPsycho-Oncology Center (CPO), Sainte-Justine University Hospital Research Center, Montreal, QC H3T 1C5, Canada.
Serge SultanPsycho-Oncology Center (CPO), Sainte-Justine University Hospital Research Center, Montreal, QC H3T 1C5, Canada.ORCID 0000-0002-7520-1734

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Pediatric Brain Tumor Survivors (PBTS) often experience social, academic and employment difficulties during aftercare. Despite their needs, they often do not use the services available to them. Following a previous qualitative study, we formulated solutions to help support PBTS return to daily activities after treatment completion. The present study aims to confirm and prioritize these solutions with a larger sample. We used a mixed-methods survey with 68 participants (43 survivors, 25 parents, PBTS' age: 15-39 years). Firstly, we collected information about health condition, and school/work experience in aftercare. Then, we asked participants to prioritize the previously identified solutions using Likert scales and open-ended questions. We used descriptive and inferential statistics to analyze data, and qualitative information to support participants' responses. Participants prioritized the need for evaluation, counseling, and follow-up by health professionals to better understand their post-treatment needs, obtain help to access adapted services, and receive information about resources at school/work. Responses to open-ended questions highlighted major challenges regarding the implementation of professionals' recommendations at school/work and the need for timely interventions. These results will help refine solutions for PBTS and provide key elements for future implementation. Translating these priorities into action will need further work involving professionals and decision makers.

Indexed as

Brain NeoplasmsAdolescentAdultChildEmploymentHealth PersonnelHumansParentsSurvivorsYoung Adultadolescent/young adultbrain tumorparentssurveysurvivorship

Identifiers

PMID37754538
PMCPMC10527929

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.