ArticleJournal of hospice and palliative care2023
Barriers to Effective Communication about Advance Care Planning and Palliative Care: A Qualitative Study.
Article in Journal of hospice and palliative care, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed.
- Associations Between Short Video Exposure, Empathy and Attitudes Toward End-Of-Life Care Among Nursing Students: A Cross-Sectional Study.Nursing open · 2026Article
- Anticipatory communication about housing, care and end of life in romantic partnerships.Zeitschrift fur Gerontologie und Geriatrie · 2026Review
- Communication Barriers and Facilitators to Specialist Pediatric Palliative Care Involvement in Pediatric Oncology Settings Across Canada.Psycho-oncology · 2026Article
- Article
- Evaluating a motivational interviewing-based communication program for nurses in advance care planning: a quasi-experimental study.BMC palliative care · 2026Article
- Surrogate Decision-Making Practices Regarding End-of-Life Care for People With Dementia in Long-Term Care Hospitals: A Qualitative Descriptive Study.Journal of advanced nursing · 2026Article
- Values elicitation among surgical oncologists: Findings from an international survey.European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology · 2026Article
- A Multidimensional Narrative Review of Disparities in Hospice Care Use.The American journal of hospice & palliative care · 2026Article
- Talking about the hypothetical future: Serious illness communication for residents living with dementia in long-term care homes - An integrative review.Palliative care and social practice · 2026Review
- Knowledge of advance care planning and advance directives among US adults: Implications for health policy and practice.Palliative care and social practice · 2026Article
- Provider Perspectives on Implementation of Adult Community-Based Palliative Care: A Scoping Review.Medical care research and review : MCRR · 2025Article
- The Practices of Portuguese Primary Health Care Professionals in Palliative Care Access and Referral: A Focus Group Study.Healthcare (Basel, Switzerland) · 2025Article
- Enhancing nursing's role in community-based palliative care: closing gaps to improve patient outcomes.BMC nursing · 2025Article
- Integrating Telehealth into Community-Based Palliative Care: A Systematic Review.Journal of multidisciplinary healthcare · 2025Review
- Co-production in practice: A qualitative study of the development of advance care planning workshops for South Asian elders.Palliative medicine · 2025Article
- Attitudes towards antibiotic use in end-of-life care: a nationwide Italian physician survey.Le infezioni in medicina · 2025Article
- Article
- Article
- Machine Learning for Targeted Advance Care Planning in Cancer Patients: A Quality Improvement Study.Journal of pain and symptom management · 2024Article
- Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Purpose: The purpose of this study was to identify barriers to effective conversations about advance care planning (ACP) and palliative care reported by health care and community-based service providers in Massachusetts, USA. Methods: This qualitative research analyzed open-ended responses to two survey questions, inquiring about perceived barriers to having conversations about ACP and palliative care with patients and consumers. Data were collected between November 2017 and June 2019 from nine organizations in Massachusetts, including health care provider organizations, health insurers, community-based organizations, and a nursing education institution. Two researchers reviewed and coded the responses and identified common themes inductively. Results: Across 142 responses, primary barriers to ACP included hesitation and lack of understanding and knowledge, discomfort and resistance among service providers, lack of staff knowledge, difficulties with follow-up, and differences in ACP policies across regions. Common barriers to palliative care were misconceptions about palliative care and lack of knowledge, service providers' lack of preparedness, and limited policy support and availability. Challenges relevant to both ACP and palliative care were fear and discomfort around serious illness discussions, lack of knowledge and awareness, discussions that occur too late, and cultural and language barriers. Conclusion: Health care practitioners and community-based professionals reported consumer-, service provider-, and system-level barriers to facilitating conversations about ACP and palliative care with patients experiencing serious illness. There is a need for more tools and support to strengthen service providers' ACP and palliative care competencies and to promote a structured approach to health care planning conversations.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.