Evidence map›Paper›PMID 37737837›Full record

ArticleJMIR cancer2023

Content Quality of YouTube Videos About Metastatic Breast Cancer in Young Women: Systematic Assessment.

Nina Morena, Yitzchok Ahisar, Xena Wang, Diana Nguyen, Carrie A Rentschler, Ari N Meguerditchian

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in JMIR cancer, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Observational
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Nina MorenaArt History and Communication Studies, Faculty of Arts, McGill University, Montreal, QC, Canada.ORCID https://orcid.org/0000-0001-6904-478X
Yitzchok AhisarGeneral Surgery, Faculty of Medicine, University of British Columbia, Vancouver, BC, Canada.ORCID https://orcid.org/0000-0002-5215-1201
Xena WangFaculty of Medicine, McGill University, Montreal, QC, Canada.ORCID https://orcid.org/0009-0000-9563-154X
Diana NguyenResearch Institute of the McGill University Health Centre, Montreal, QC, Canada.ORCID https://orcid.org/0000-0002-7019-984X
Carrie A RentschlerArt History and Communication Studies, Faculty of Arts, McGill University, Montreal, QC, Canada.ORCID https://orcid.org/0000-0002-2073-0559
Ari N MeguerditchianResearch Institute of the McGill University Health Centre, Montreal, QC, Canada.ORCID https://orcid.org/0000-0003-4798-8135

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundYoung women with metastatic breast cancer (MBC) are part of a digitally connected generation yet are underserved in terms of information needs. YouTube is widely used to find and identify health information. The accessibility of health-related content on social media together with the rare and marginalized experiences of young women with MBC and the digital media practices of younger generations imply a considerable likelihood that young women with MBC will seek information and community on the internet.

objectiveThis study aims to assess the content quality of MBC YouTube videos and to identify themes in the experiences of young women with MBC based on YouTube videos.

methodsA systematic assessment of MBC YouTube videos using the search term "metastatic breast cancer young" was conducted in August 2021. The search was performed in an incognito browser and with no associated YouTube or Google account. Search results were placed in order from most to least views. Title, date uploaded, length, poster identity, number of likes, and number of comments were collected. Understandability and actionability were assessed using the Patient Education Materials Assessment Tool (PEMAT); information reliability and quality were assessed with DISCERN. Themes, sponsorships, and health care professionals' and patients' narratives were reported.

resultsA total of 101 videos were identified. Of these, 78.2% (n=79) included sponsorships. The mean PEMAT scores were 78.8% (SD 15.3%) and 43.1% (SD 45.2%) for understandability and actionability, respectively. The mean DISCERN score was 2.44 (SD 0.7) out of 5. Identified themes included treatment (n=67, 66.3%), family relationship (n=46, 45.5%), and motherhood (n=38, 37.6%).

conclusionsYouTube videos about young women with MBC are highly understandable but demonstrate moderate rates of actionability, with low reliability and quality scores. Many have a commercial bias. While web-based materials have limitations, their potential to provide patient support is not fully developed. By acknowledging their patients' media habits, health care professionals can further develop a trusting bond with their patients, provide a space for open and honest discussions of web-based materials, and avoid any potential instances of confusion caused by misleading, inaccurate, or false web-based materials.

Indexed as

assessment toolbreast cancerconsumer health informationfalse informationhealth educationhealth literacymedia literacymetastatic breast cancerpatient educationpatient literacysocial mediatreatmentvideosweb-basedwomenYouTube

Identifiers

PMID37737837
PMCPMC10685279

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.