ArticleCancer medicine2023
Barriers, facilitators, and recommendations for sexual orientation and gender identity data collection in community oncology practices.
Article in Cancer medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
23 citing papers in PubMed, 22 citations in OpenAlex.
- Sexual Orientation and Gender Identity Data and HIV Preexposure Prophylaxis Disparity Detection.JAMA network open · 2026Article
- Findings from Two Online Experiments to Advance the Science on Sexual Orientation and Gender Identity Measurement: An Application to Estimating Cigarette Relighting Behaviors.Psychology of sexual orientation and gender diversity · 2026Article
- "A sweating moment": impact of disclosure in cancer care on LGBTQI patient satisfaction.Journal of cancer survivorship : research and practice · 2026Article
- Difference-making pathways to implementing systematic, partial, or no data collection of sexual orientation and gender identity in oncology settings: a coincidence analysis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Do I need to know my patient's sexual orientation and gender identity? Insights from Swiss primary care physicians.BMC primary care · 2025Article
- Implementation determinants of LGBTQ+ inclusive practices in US health systems: a qualitative descriptive study of nurse leaders.BMJ open · 2025Article
- Sexual Orientation and Gender Identity Data in Oncology: Thematic Analysis From a National Qualitative Interview Study.Cancer medicine · 2025Article
- Mode of Patient Sexual Orientation and Gender Identity Disclosure and Receipt of Tailored Cancer Resources.JAMA network open · 2025Article
- Implementing MyChart-Driven Sexual Orientation and Gender Identity Data Collection at Three Comprehensive Cancer Center Clinics.Journal of the National Comprehensive Cancer Network : JNCCN · 2025Article
- Patient navigator training for sexual orientation and gender identity data collection at an NCI-Designated Comprehensive Cancer Center.Journal of the National Cancer Institute. Monographs · 2025Article
- Mapping disparities: identifying cancer care gaps in sexual and gender minority patients.Journal of the National Cancer Institute. Monographs · 2025Article
- Perspectives on sexual orientation and gender identity data collection from healthcare system staff and leadership: case study in an academic hospital setting.Journal of the National Cancer Institute. Monographs · 2025Article
- Implementation of culturally relevant sexual and gender minority/sexual orientation and gender identity training at an NCI-Designated Cancer Center.Journal of the National Cancer Institute. Monographs · 2025Article
- Implementation of sexual orientation and gender identity data collection in a cancer care setting.Journal of the National Cancer Institute. Monographs · 2025Article
- Affirming and effective sexual orientation and gender identity data collection: barriers, preferences, and recommendations from the community, clinicians, and staff.Journal of the National Cancer Institute. Monographs · 2025Article
- Patient Sexual Orientation and Gender Identity Information Practices in Oncology.JAMA network open · 2025Article
- A Multistakeholder Qualitative Study to Inform Sexual Orientation and Gender Identity Data Collection in the Cancer Care Setting.LGBT health · 2025Article
- Capturing sexual orientation and gender identity information in electronic medical records to inform the person-centred care of sexual and gender minority people.BMC public health · 2025Article
- Considerations for the Treatment of Sexual and Gender Minority Individuals in Colon and Rectal Surgery.Clinics in colon and rectal surgery · 2025Review
- Provider preparedness to care for sexual and gender minority adolescent and young adult cancer patients: A scoping review.PEC innovation · 2024Article
Corrections and comments
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Authors and funding
9 authors at 6 institutions in 1 country.
Funding
Abstract
backgroundSexual orientation and gender identity (SOGI) data collection in community oncology practices is critical to identify and address cancer inequities, but less than 20% of NCI Community Oncology Research Program (NCORP)-affiliated practices regularly collect SOGI data despite widespread recommendations. We evaluated multilevel barriers and facilitators for SOGI data collection at NCORP practices.
methodsWe conducted 14 semi-structured interviews at seven purposefully sampled NCORP oncology practices. We interviewed one clinician (oncologist, advanced practice provider) and one clinic staff member per practice. Thematic analysis informed by the Consolidated Framework for Implementation Research (CFIR) was conducted to identify barriers and facilitators.
resultsThematic saturation occurred after interviews at six practices and was confirmed with interviews at an additional practice. Participants highlighted multilevel barriers including low levels of understanding, information technology infrastructure, and perceived low relative priority. Not understanding the role of SOGI data in oncology care contributed to cis-heteronormative culture. At the clinic level, this culture coincided with a lack of processes and policies for collecting SOGI from all patients. At the care team level, perceived irrelevance to oncology care was related to discomfort asking SOGI, fear of patient discomfort, and limited awareness of SOGI in electronic health records. Suggested solutions included: normalizing asking SOGI questions, giving patients privacy to complete SOGI, and clarifying clinical relevance.
conclusionsSOGI data collection barriers stemmed from perceptions that SOGI disclosure does not influence care quality. Oncology teams may benefit from training on culturally sensitive SOGI collection, education on SOGI data relevance to oncology practices, and support for implementing SOGI data collection policies.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.