Evidence map›Paper›PMID 37730384›Full record

ArticleBMJ open2023

Young people's opinions of cancer care in England: the BRIGHTLIGHT cohort.

Luke Hughes, Lorna A Fern, Jeremy S Whelan, Rachel M Taylor, Brightlight Study Group

Abstract read
In one paragraph

Article in BMJ open, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Luke HughesCancer Clinical Trials Unit, University College London Hospitals NHS Foundation Trust, London, London, UK.
Lorna A FernCancer Clinical Trials Unit, University College London Hospitals NHS Foundation Trust, London, London, UK lorna.fern@nhs.net.
Jeremy S WhelanCancer Division, University College London Hospitals NHS Foundation Trust, London, UK.ORCID 0000-0001-6793-5722
Rachel M TaylorCentre for Nurse, Midwife and Allied Health Profession Led Research (CNMAR), University College London Hospitals NHS Foundation Trust, London, UK.ORCID 0000-0002-0853-0925
Brightlight Study GroupCancer Clinical Trials Unit, University College London Hospitals NHS Foundation Trust, London, London, UK.

Funding

Department of Health RP-PG-1209-10013
6 · The paper itself

Abstract

objectivesThe BRIGHTLIGHT cohort study was the national evaluation of cancer services for teenager and young adults (TYA). This was analysis of free-text survey data to better understand their experiences of cancer care.

designCohort study

settingNational Health Service hospitals delivering cancer care in England

participants830 young people newly diagnosed with cancer.

interventionsExposure to specialist care in the first 6 months after diagnosis defined as care in a TYA Principal Treatment Centre (PTC). This was categorised as follows: all care in a TYA-PTC (ALL-TYA-PTC), no care in a TYA-PTC (NO-TYA-PTC) so care delivered in a children/adult unit only and some care in a TYA-PTC with additional care in a children's/adult unit (SOME-TYA-PTC). PRIMARY OUTCOME: Data were collected through the BRIGHTLIGHT survey included free-text questions which asked patients 'what was the best aspects of their experiences of care' and 'what aspects could be improved'. These comments were analysed using content analysis. Themes were compared between categories of care, then ranked in order of frequency, ranging from the most endorsed to the least.

resultsOverall, young people were most positive about their healthcare team, while the area highlighted for improvement was diagnostic experience. Differences between the three groups suggested those who had some or all treatment in a TYA-PTC valued the place of care. Regardless of where TYA were treated their healthcare teams were favourably viewed. Age appropriate place of care was highlighted to be of value for those in PTCs.

conclusionsThese data show the value young people placed on the care they received in TYA specific wards. Young people who accessed some or all of their care in a TYA-PTC highly endorsed their place of care as one of the best elements of their care, and it is further emphasised by those who had shared care who experienced difficulty with lack of age-appropriate care when treated outside the TYA-PTC.

Indexed as

NeoplasmsState MedicineAdolescentAdult ChildrenChildCohort StudiesEnglandHospitalsHumansYoung AdultAdolescentONCOLOGYOrganisational development

Identifiers

PMID37730384
PMCPMC10514633

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.