Evidence map›Paper›PMID 37728139›Full record

ArticleArthritis care & research2024

Impact of the COVID-19 Pandemic on Health Care Access and Diagnosis of Pulmonary Arterial Hypertension Among Patients With Systemic Sclerosis.

Alicia Callisto, Dylan Hansen, Jenny Walker, Gene Siew Ngian, Diane Apostolopoulos, David Liew, Vibhasha Chand, Catherine L Hill, Kim Griggs, Alicia Calderone and 4 more

Open access · bronzeAbstract read
In one paragraph

Article in Arthritis care & research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.8field-weighted citation impact, top 26% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 3 citations in OpenAlex.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 6 institutions in 1 country.

Alicia CallistoRoyal Adelaide Hospital and University of Adelaide, Adelaide, South Australia, Australia.ORCID 0000-0002-3639-3040
Dylan HansenSt. Vincent's Hospital, Melbourne, Victoria, Australia.
Jenny WalkerFlinders Medical Centre, Adelaide, South Australia, Australia.
Gene Siew NgianMonash University, Clayton, and Monash Health, Melbourne, Victoria, Australia.
Diane ApostolopoulosMonash University, Clayton, and Monash Health, Melbourne, Victoria, Australia.ORCID 0000-0003-1078-6732
David LiewAustin Health and University of Melbourne, Melbourne, Victoria, Australia.ORCID 0000-0001-8451-8883
Vibhasha ChandSchool of Public Health and Preventative Medicine, Monash University, Melbourne, Australia.
Catherine L HillThe Queen Elizabeth Hospital, Woodville, and Royal Adelaide Hospital and University of Adelaide, Adelaide, South Australia, Australia.ORCID 0000-0001-8289-4922
Kim GriggsRoyal Adelaide Hospital and University of Adelaide, Adelaide, South Australia, Australia.
Alicia CalderoneSt. Vincent's Hospital, Melbourne, Victoria, Australia.ORCID 0000-0001-8925-6771
Mandana NikpourUniversity of Melbourne and St. Vincent's Hospital, Melbourne, Victoria, Australia.
Joanne SahharMonash University, Clayton, and Monash Health, Melbourne, Victoria, Australia.
Wendy StevensSt. Vincent's Hospital, Melbourne, Victoria, Australia.
Susanna ProudmanRoyal Adelaide Hospital and University of Adelaide, Adelaide, South Australia, Australia.ORCID 0000-0002-3046-9884
Royal Adelaide Hospital · AUMonash Health · AUSt Vincent's Hospital Melbourne · AUThe University of Melbourne · AUFlinders Medical Centre · AUMonash University · AU

Funding

Actelion AustraliaArthritis AustraliaBayerCSL BiotherapiesGlaxoSmithKline AustraliaNational Health and Medical Research Council of Australia APP 1126370National Health and Medical Research Council of Australia National Health and Medical Research Council of AuPfizerScleroderma Australia
6 · The paper itself

Abstract

objectiveRegular clinical assessment for complications of systemic sclerosis (SSc) such as pulmonary arterial hypertension (PAH) is essential for early institution of therapy and improved outcomes. The objective of this study was to determine the impact of COVID-19 pandemic-related restrictions on health care access of patients with SSc, including screening for PAH.

methodsSouth Australian and Victorian patients enrolled in the Australian Scleroderma Cohort Study were surveyed about their perceptions of the impact of the pandemic on mental well-being, access to medications, investigations, and management of SSc. Frequency of annual rheumatology assessments, pulmonary function tests (PFT), and transthoracic echocardiography (TTE) to screen for PAH were compared with rates from before the pandemic.

resultsA total of 312 of 810 patients with SSc responded (38.5% response); 273 were female (87.5%), the median age was 64.7 years, 77.2% had limited disease, the median illness duration was 15.6 years, 15.7% were immunosuppressed, 32.1% had interstitial lung disease, and 6.4% had PAH. A total of 65.7% of consultations were by telehealth, of which 81.2% were by telephone. Compared with respondents in South Australia (n = 109), Victorian respondents (n = 203) experiencing prolonged lockdown, reported reduced access to their rheumatologist (49.3% vs 27.9%; P = 0.004), greater use of consultation by video (17.3% vs 2.1%; P = 0.008), greater health care disruption (49.0% vs 23.2%; P < 0.001), and worse mental health (P = 0.002). Respondents reported reduced access to PFT and TTE (31.7% and 22.5%, respectively). Annual visits, PFT, TTE, and new diagnoses of PAH were reduced in 2020 to 2022 compared with 2011 to 2019.

conclusionThe COVID-19 pandemic-related disruption to health care for patients with SSc was associated with worse mental health and reduced screening and diagnosis of PAH, which may impact long-term outcomes.

Indexed as

COVID-19Hypertension, PulmonaryPulmonary Arterial HypertensionScleroderma, SystemicAustraliaCohort StudiesCommunicable Disease ControlCOVID-19 TestingFemaleHealth Services AccessibilityHumansMaleMiddle AgedPandemics

Identifiers

PMID37728139
PMCPMC10952702
OpenAlexW4386878858

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.