ArticleWomen's health (London, England)
'Living in a world that's not about us': The impact of everyday life on the health and wellbeing of autistic women and gender diverse people.
Article in Women's health (London, England). The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it, 20 citations in OpenAlex.
- Experiences of females on the autism spectrum through the perspective of minority stress theory: a review.Frontiers in psychiatry · 2025Pooled it
- Experiencing Independence: Perspectives from Autistic Adults.Journal of autism and developmental disorders · 2026Article
- Building pain resilience in LGBTQIA+ individuals.Physical therapy · 2026Article
- Gender Diversity, Gender Dysphoria/Incongruence, and the Intersection with Autism Spectrum Disorders: An Updated Scoping Review.Journal of autism and developmental disorders · 2026Article
- Understanding health services and puberty for autistic adolescents and those with disability: A scoping review to inform occupational therapy practice.Australian occupational therapy journal · 2026Article
- "The best way we can stop suicides is by making lives worth living": a mixed-methods survey in the UK of perspectives on suicide prevention from the autism community.EClinicalMedicine · 2026Article
- 'I did not think they could help me': Autistic adults' reasons for not seeking public healthcare when they last experienced suicidality.Autism : the international journal of research and practice · 2025Article
- "I Don't Think Anyone's Ever Asked Me About the Two Before": Making Sense of Co-occurring Autism and BPD in Inpatient Mental Health Settings.Journal of autism and developmental disorders · 2025Article
- "A combination of everything": a mixed-methods approach to the factors which autistic people consider important in suicidality.Autism in adulthood · 2025Article
- Lifetime stressor exposure is related to suicidality in autistic adults: A multinational study.Autism : the international journal of research and practice · 2025Article
- Unmet need for autism-aware care for gynaecological, menstrual and sexual wellbeing.Autism : the international journal of research and practice · 2025Article
- A good autistic life: an autistic-led conceptualization of autistic flourishing through autistic women's-lived experiences.Frontiers in sociology · 2025Article
- Integrating Positive Psychology and Autism: A Roundtable.Autism in adulthood · 2024Article
- Chronic Pain in Autistic Youth: Clinical Prevalence and Reflections on Tailoring Evidence-Based Interventions from an Interdisciplinary Treatment Team.Children (Basel, Switzerland) · 2024Article
- A qualitative analysis of the psychological impacts of menopausal transition for neurodivergent and neurotypical women.Women's health (London, England)Article
- Comment on: 'Living in a world that's not about us': The impact of everyday life on the health and wellbeing of autistic women and gender diverse people.Women's health (London, England)Article
Corrections and comments
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Authors and funding
5 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAutistic women and gender diverse people have specific needs related to their physical and mental health. They also experience more barriers to accessing services. While there are autobiographical accounts of the 'invisible' challenges that autistic women and gender diverse people face day-to-day, there has been limited research that explores how these experiences impact health and wellbeing.
objectivesThis study aimed to understand the everyday experiences of autistic women and gender diverse people, and their impact on health and wellbeing.
designQualitative methods were used to elicit rich information about the unique experiences of autistic women and gender diverse people.
methodsWe conducted semi-structured interviews with 31 autistic adults. The data were analysed using reflexive thematic analysis.
resultsWe identified 3 themes and 10 subthemes. Our first theme described 'all the stuff that you have to do to get through life', including managing domestic tasks, parenting, unique health needs and co-occurring physical conditions. The second theme outlined the impact of 'living in a world that's not about us', describing how navigating the neurotypical world, managing gender role expectations and trying to fit impacts on mental health. Our third theme outlined the positive impacts of 'shedding all the layers and being myself', including the importance of formal identification, exploring autistic identity and community, and including autistic people in research to support them to 'have a good life on their own terms'.
conclusionThis study emphasized the importance of shifting the responsibility of health and wellbeing from the individual, and the importance of interpersonal, community, cultural, policy and societal factors in ensuring positive health outcomes for autistic women and gender diverse people. It also highlighted areas that enable autistic women and gender diverse people to flourish, including autistic community connectedness, positive relationships and autistic-affirming support from health professionals.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.